Post-Polio Health Care Considerations for Families and Friends

Post-Polio Health International

post-polio.org  polioplace.org

 
    FLOWCHART

Click for a pdf of the whole booklet.

VII. Plan for the Future – Don't Reinvent the Wheel!

Post-Polio Health Care Considerations for Families & Friends is a resource of Post-Polio Health International, including International Ventilator Users Network. Explore the organization's comprehensive websites, post-polio.org, polioplace.org and ventusers.org, to learn more about the late effects of polio, post-polio syndrome and home mechanical ventilation.

Aging

National Institute on Aging Health Information Publications

Administration on Aging Benefits Check Up helps you find and
enroll in public and private benefits programs.

National Association of Area Agencies on Aging Local Agency Finder

Complementary and Alternative Medicine

National Center for Complementary and Alternative Medicine (NCCAM)

Disability

ILRU Directory of Centers for Independent Living and Statewide Councils ...
A center for independent living is a consumer-controlled, community-based, cross-disability, nonresidential private nonprofit agency that is designed and operated within a local community by individuals with disabilities and provides an array of independent living services.

National Council on Disability (NCD) Publications by Year

National Organization on Disability Emergency Preparedness Materials

Vocational Rehabilitation State Organizations

Death and Dying

Aging With Dignity, Five Wishes

National Hospice and Palliative Care Organization

Hospice Care: MedlinePlus

Hospice Foundation of America

Center to Advance Palliative Care

Book: Caregiver's Path to Compassionate Decision Making: Making Choices for Those Who Can't, Viki Kind, MA, Greenleaf Book Group Press, Austin, Texas, www.gbgpress.com

Housing

... Stay at Home Options: Home Modifications

Center for Universal Design

Concrete Change

AARP Home & Garden

... Stay at Home Options: Devices

AbleData

... Stay at Home Options: Outside Help

National Association for Home Care & Hospice Agency Locator

Medicare.gov – Home Health Compare – Agency Search

Hiring a Home Health Care Agency: Crucial Questions

Guide to Using Personal Assistance Services

Book: When Mom and Dad Need Help: A Step-by-Step Guide to Senior Housing and Care, Michael C. Campbell, Iffenwen Publishing Company, Painesville, Ohio, iffenwen.com

... Moving Out of Home Options

Foundation for the Future of Aging Series

The series includes:

10 Questions to Answer Before You or Your Loved One Need Long-Term Care

10 Questions to Answer Before You or A Loved One Purchase Long-Term Care

10 Questions to Answer Before Choosing a Nursing Home or Assisted Living

10 Questions to Answer Before Managing Your Long-Term Care Services

10 Questions to Answer When You Are Not Happy with Your Long-term Care

... Housing Options: Find Assisted Living

Assisted Living Federation of America (ALFA) is the largest national association exclusively dedicated to professional operated assisted living communities for seniors.

... Housing Options: Find Skilled Nursing Facility (SNF), a.k.a. Nursing Home

US Department of Health and Human Services Center for Medicare and Medicaid Services Skilled Nursing Facility Center

Medicaid

Centers for Medicare and Medicaid Services
States run their own Medicaid Programs and are called Medicaid. Some state programs have unique names, e.g., MO HealthNet in Missouri, Medi-Cal in California.

Medicare

Medicare.gov

Medicare Rights Center: Getting Medicare Right

Recreation/Activity

The National Center on Physical Activity and Disability

Taking Care of Yourself

So Far Away: Twenty Questions and Answers About Long-Distance Caregiving

National Family Caregivers Association

Anticipatory Grief

Transportation

National Center on Senior Transportation administered by Easter Seals.

Senior Driving: Safety Tips, Warning Signs, and Knowing When to Stop

Helping the Senior Driver in Your Life

SeniorDrivers.org

Senior Citizens on the Road: Tips for Safe Driving

When Things Aren't Right

The National Long-Term Care Ombudsman Resource Center

Medicare Beneficiary Ombudsman


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To Post-Polio Health Care Considerations home

To PHI's website, www.post-polio.org