Frequently Asked Questions

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How do I connect with other polio survivors?

How can I donate my body to science for the benefit of other polio survivors?
Many people have asked the same question. Unfortunately, there is no central location/institution that is performing autopsies on polio survivors. Someone locally might be interested, so call the nearest medical school and ask to speak with someone in the Pathology Department or Neuropathology Department.

How do I find out if my breathing and sleep problems are related to my prior polio?  I have breathing problems due to a neuromuscular condition. What tests should I have done?
International Ventilator Users Network published “Breathing and Sleep Problems in Polio Survivors” and “Tests for Breathing Problems If You Have a Neuromuscular Condition.” The first article is a broad summary of the problems; the second article describes a routine evaluation of respiratory function and lists select medical articles for ALS, cough, Duchenne muscular dystrophy and the late effects of polio.

Where can I find a list of the symptoms that polio people are experiencing as they age?
Check out Late Effects of Polio ... For Polio Survivors, For Families and Friends, For Health Professionals.

Where can I find a facility or healthcare professional that has knowledge of the late effects of polio and post-polio syndrome?
PHI maintains a Post-Polio Directory that lists clinics and health professionals from all over the world. If you do not find a contact in your area, connect with the closest support group listed in the Post-Polio Directory and ask if they have any recommendations.

Where can I find local support?
PHI's Post-Polio Directory lists support group and post-polio organizations from all over the world. Your group is not listed? Notify info@post-polio.org.

Where can I find a list of books written about polio and ones written by polio survivors?
PHI compiles an online list of Books About the Polio Experience.

Where can I find DVDs, Videos and Films about the polio experience?
PHI maintains a list of DVDs, Videos and Films about the Polio Experience.

Where can I find authoritative, comprehensible and organized information about the polio epidemics for my History Day Project?
The National Museum of American History (NMAH) at the Smithsonian created an exhibit “Whatever Happened to Polio?” in 2005-2006. The exhibit closed and part of it was moved to the Roosevelt Warm Springs Institute for Rehabilitation in Warm Springs, Georgia. The NMAH created an excellent companion website that is still available. See “Whatever Happened to Polio?”

Where can I find a list of books written by health professionals about post-polio syndrome?
PHI compiles an online list of Medical/Clinical Publications about Post-Polio Syndrome and Other Post-Polio Problems.

Where can I find out if post-polio syndrome is contagious?
Post-polio syndrome is a condition as a result of having had polio earlier in life. There is no indication that post-polio syndrome is contagious. The only time a person is contagious is during acute poliomyelitis. For an authoritative and detailed description of acute poliomyelitis, check out Poliomyelitis at www.cdc.gov/polio/.

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