Frequently Asked Questions

(continued)

Where can I find financial assistance for solutions related to the late effects of polio?

PHI has funding available for bracing or special shoes for survivors in need in its Joyce and Arthur Siegfried Memorial Fund. Email Brian Tiburzi at info@post-polio.org for an application. The maximum amount given per applicant is $800.

Arthur and Joyce Siegfried
Arthur and Joyce Siegfried

Survivors living in Missouri can apply for funds from the Gilbert Goldenhersh Memorial Tribute Fund for bracing and modified shoes. Email Brian Tiburzi at info@post-polio.org for an application. The maximum amount given per applicant is $800.

And PHI recommends that survivors in the USA contact the closest Independent Living Center.
See listing at ILRU Directory of Centers & SILCs-2009 (Vol. 31).

Or for those of working age, contact your state's Vocational Rehabilitation State Offices.
Many states link you to the area offices, too.

Or for the elderly, contact your local Council on Aging. Check for a number in your phone book or search for Council on Aging and your county or city name.

Some larger support groups have established funds to financially assist local polio survivors.
Check Post-Polio Directory for a group near you.

Where can I find the number of polio survivors in the US?

Where can I find the number of polio survivors in other countries?
PHI has received detailed information from the following countries. PHI invites polio-related groups in any country to send their statistics to editor@post-polio.org for publication.
England     Germany     Japan     New Zealand

Where can I find the regulations for traveling with a disability post-September 11th?
The following website from the US Transportation Security Administration is for travelers www.tsa.gov/travelers. Click on "Travelers with Disabilities and Medical Conditions" to find specific regulations.

Also, PHI has compiled a list of Air Carriers with Medical Policies with direct links to the airlines' respective policies.

Where can I find regulations regarding immunization against polio for worldwide travelers?
For current information on the status of polio eradication efforts and vaccine recommendations, consult the Travel Notices at http://wwwn.cdc.gov/travel/ or the Global Polio Eradication Initiative. Polio vaccine is not typically required by law; however, there are polio vaccine requirements for attending the annual Hajj in Saudi Arabia.

Where can I find someone who still makes Hoke corsets?
Hastings Professional Medical Equipment, Cleveland, Ohio (216-898-3300), Freeman Manufacturing Company, Sturgis, Michigan (800-253-2091), Snell’s Orthotics & Prosthetics, Memphis, Tennessee (901-725-7048), and Shirlene Horton at C.H. Martin Company, Orthotics/Prosthetics, 329 Marietta St NW, Atlanta, Georgia 30313 (404-525-1533). If you live in the Bay Area (California) and can pay out of pocket, contact, Barbara Becchio (bbeccio@sbcglobal.net; phone – 510-734-0434). She is a costume maker who teaches theatrical costuming and who sews for the San Francisco opera.

What is polio?
Polio is the short name for poliomyelitis, a disease caused by a virus. PHI's Handbook on the Late Effects of Poliomyelitis for Physicians and Survivors contains an abbreviated description – History of Polio.

What is poliomyelitis?
An authoritative and extensive description of acute poliomyelitis prepared by the Centers for Disease Control and Prevention can be found at www.cdc.gov/polio/. For a detailed description, go to "The Pink Book."

For access to an extensive website about polio coordinated by Communication Initiative Network go to http://www.comminit.com/en/polio.html.

What is the status of polio eradication?
For global updates on the global count of cases and the eradication effort, check the Global Polio Eradication Initiative.

What is "post-polio syndrome?"
One can find several variations of a basic definition of "post-polio syndrome." However, a universal definition is important for research purposes, and the one most commonly used is found in PHI's Information about the Late Effects of Polio ... For Health Professionals and on the National Institute for Neurological Disorders and Strokes (NINDS) website Post-Polio Syndrome.

PHI's Executive Director wrote What is Post-Polio Syndrome? for Polio Survivors and Associates, A Rotary Action Group.

When was PHI started?
The organization was started as a not-for-profit in 1960, when its Founder Gini Laurie and friends established the International Iron Lung Polio Assistance, Inc. (See History of PHI.) Post-Polio Health International was chosen in 2003 to better reflect the organization's mission. It replaced Gazette International Networking Institute (GINI), a name that honored the highly-respected founder, who died in 1989.

Back to top

Back to beginning of Frequently Asked Questions