PROMOVIENDO SOLUCIONES POSITIVAS Salud Post-Polio, Primavera 2016, Volumen 32, Número 2 PREGUNTA: Como joven sobreviviente de la poliomielitis, creo que lo más difícil es tener una enfermedad / diagnóstico que ya no tiene contexto social actual. Es como estar atrapado en un túnel del tiempo cultural. Tengo una condición que está relativamente curada y erradicada de la mayoría de las partes …
Shared peer advice from polio survivors about what works for them.
Share your solution:
News about people who have made significant contributions to the disability community.
Share your story:
Techniques to Help Us Make Changes
Mavis Matheson, MD, Regina, Saskatchewan, Canada In 1995, I wrote an article called Changing Your Life By Conserving Energy. In it, I listed three techniques from an article by Sybil Kohl. Her techniques have helped me to make healthy choices and prevent further pain and weakness. Kohl [1] suggests three techniques that we could use to help ourselves make changes. These are …
Viviendo con dolor
Penney Cowan, Fundadora y Directora General de la Asociación Americana de Dolor Crónico. Saber llevar la vida hoy en día puede ser difícil. Saber llevar la vida con dolor es aún más difícil, pero es posible. Hay maneras de equilibrar su vida para que pueda vivir de la manera que elija, en lugar de permitir que su enfermedad dirija su …
Health Professionals say: PPS-G14, Sequelae of Polio B91
In 2016, Post-Polio Health International (PHI) surveyed health professionals with experience in post-polio patient care. A PowerPoint of some of the data can be viewed at Survey of Health Professionals with Experience in Post-Polio Patient Care. Post-Polio Health, Volume 33, Number 3, (August, 2017) will feature an article about the results, too. One thought not discussed in either of the above …
Constipation in Polio Survivors
From my standpoint as a specialist in Physical Medicine and Rehabilitation, the connection between constipation and post-polio syndrome is academic. i.e., it is an interesting discussion and may be important, but I am not sure it changes treatment. William M. DeMayo, MD Here are some practical thoughts. I would address the issue the same as a partial neurogenic bowel, i.e., in …