Publication Information


Post-Polio Health International holds copyrights on all PHI, GINI, IPN and IVUN publications. No parts of Post-Polio Health International's publications may be reproduced or transmitted in any form without permission in writing from PHI. Because of PHI's philosophy that encourages networking, permission to reprint is usually given.

Editorial & Web Policies

Content of Post-Polio Health International’s newsletters

The individuals who write articles and stories for the newsletters donate their services. The major medical articles are written by health professionals and reviewed by another health professional expert in the topic. For example, James C. Agre, MD, PhD, or Gunnar Grimby, MD, PhD, would review an article about exercise for the survivors of polio. Augusta Alba, MD, or John R. Bach, MD would review articles relating to breathing problems. Medical questions and concerns about scope and content are resolved with advice from Board members with medical and clinical experience.

The articles are edited so that "people first" language is used. For example, "uses a wheelchair" is used; "wheelchair-bound" is not. Other examples include the preferred use of "ventilator user" or "ventilator-assisted" (not "on a ventilator" or "ventilator-dependent"), "person with a disability" (not "handicapped"), and "polio survivor" or "survivor of polio" (not "victim").

The editors screen all materials (including books, videos, CDs, etc.) received, and exclude those that are not consistent with PHI's philosophy and those not considered medically sound, of dubious content, or of questionable validity. The content is also nonpartisan and nonsectarian.

To obtain permission, please submit your request to

Please specify:

  • which newsletter, Post-Polio Health or Ventilator-Assisted Living
  • the volume and number and page(s)
  • the title and author of the article
  • your name and contact information
  • the name of your support group or organization (if applicable)
  • the name of your publication
  • the fee (if applicable) you charge for it
  • the number of copies you will be creating
  • the url of your newsletter
  • if you publish online

PHI does not grant permission to "reprint" articles online, but welcomes you to link to our website,, for articles that you would like to share with your readers.

You may also mail or fax your request to:
Post-Polio Health International (PHI)
50 Crestwood Executive Ctr, Ste 440 
Saint Louis, Missouri 63126-1916 USA
314-534-0475, 314-534-5070 fax

Office hours:
9:00–11:30 am CT and 1:30–3:00 pm CT, Monday–Friday

Want to submit an article to Post-Polio Health?

PHI is interested in any article that contributes to post-polio health. The name Post-Polio Health International is meant to project the broadest meaning of "health," encompassing the physical, emotional, social, psychological and spiritual aspects of individuals' lives. PHI is very interested in articles from other countries.

We suggest you submit a brief outline of your proposed article to After review and discussion, specific content, length of article, and deadline will be established.

In general articles are requested to be 500, 1000, 1500, 2000 words long. Photographs and references are requested. Photographs may be mailed or provided in digital form as jpg files with a minimum resolution of 300 ppi. It is preferable to not reduce the physical size of the photos.


  • For Winter – January 5
  • For Spring – March 26
  • For Summer – June 25
  • For Fall – September 24

Content of

Brian Tiburzi oversees the content of the PHI website. Please send your comments to him at

All of the material on this site is for informational purposes of the reader and is not intended to replace professional medical assistance.

The majority of the post-polio information on the site has been published in Post-Polio Health (formerly Polio Network News), edited by Brian Tiburzi, or was developed by the Post-Polio Task Force (1997, disbanded 1999).

Link Policy and Disclaimer

Information found on

The materials and websites referenced and/or linked from Post-Polio Health International's website are provided for information purposes only. The linked sites are not under the control of Post-Polio Health International (PHI), and PHI does not assume any responsibility or liability for any communication or materials available at such linked sites. Any reference to a commercial or noncommercial product, process, service or company is not an endorsement or recommendation by PHI.

If you would like your material to be considered for placement on at a location deemed appropriate by PHI, please send an email request to, with the following information:

  • URL, if requesting a link
  • Brief description of the content of the website
  • Explanation how your information fulfills PHI's mission
  • Cost of your information or if it is free

All submissions will be reviewed by PHI against our criteria. At PHI's discretion, you may be required to submit more detailed information.

Links to

Thank you for your interest in linking to Your assistance in helping PHI raise awareness of the needs of polio survivors and users of home mechanical ventilation is greatly appreciated. If you want to link to, we ask that you comply with the following guidelines:

Any text-only link must clearly be written as "Post-Polio Health International" or "Post-Polio Health International including International Ventilator Users Network" or, if linking to the International Ventilator Users Network section, the wording must be "International Ventilator Users Network."

Post-Polio Health International's logo is unique to the organization, and PHI requests that its use by restricted to PHI unless written permission is received from PHI. If you would like to display a logo-based link, please send a written request, with your website's url, to

Do not incorporate any content from PHI into your website through in-lining, framing or creating border environments around PHI content.

Your website must not present false information about PHI's mission or services.

Do not present the link to PHI's website in any way suggesting that PHI has a relationship or affiliation with your site or that PHI endorses your site, products or services.

Your website should not use insensitive language and/or negative portrayals of people with disabilities. Guidelines are found at

Your website should not contain content that could be construed as distasteful, offensive or controversial.

The information on the website may not be published, broadcast or otherwise distributed without the prior written authorization of Post-Polio Health International (PHI).