Shared peer advice from polio survivors about what works for them.

Share your solution:

info@post-polio.org

News about people who have made significant contributions to the disability community.

Share your story:

info@post-polio.org

Make Your Voice Heard

National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) and Administration for Community Living (ACL) is developing its 2024-2029 Long-Range Plan and has been seeking input from key stakeholders, including people with disabilities and their families, researchers, service providers, and others through a series of virtual listening sessions. The next session is September 28th, 1 – 4 pm ET, …

Lauro Halstead, 1936-2022

PHI was saddened to learn of the passing of Dr. Lauro Halstead, a polio survivor and one of the foremost authorities on the late effects of polio. We will have more on Dr. Halstead’s remarkable life and career in the Fall edition of Post-Polio Health.

Final Report: Cough Assist: User Education Needs, Health Service Utilization and Outcomes

PHI recently published the results of our ninth research grant. The grant for $100,000 was awarded in 2016 to Louise Rose, RN, MN, PhD, Associate Professor, Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Ontario, Canada, and Mika Nonoyama, RRT, PhD, Assistant Professor at the University of Ontario Institute of Technology. The project was titled “Cough Assist: User Education …

Can You Afford a Home-Care Worker?

Home health care can cost over $4,000 per month. AARP shares resources and government programs to help make in home care and nursing affordable. “Planning for in-home care is a lot like the Chinese adage about planting a tree: The best time was 20 years ago, and the second best time is today. “Older Americans determined to stay in their …

Daniel J. Wilson, PhD (1949-2021)

In June of 2021, the post-polio community lost a dedicated advocate for polio survivors, Daniel J. Wilson, PhD. Dan joined PHI’s board in 2006 and served in various roles, most recently as Board President from November of 2020 until his death this past June. He was Professor of History Emeritus at Muhlenberg College in Allentown, Pennsylvania, where he taught from …

New article: Warning for COVID Long Haulers From Polio Survivors

This excellent article from Medscape features five PHI board members speaking about the long-term effects of polio what that might mean for those who had COVID. The author, Sarah DeWeerdt, spoke with post-polio physicians Frederick Maynard, Marny Eulberg, Carol Vandenakker-Albanese and Frans Nollet, along with survivors such as PHI Board President Daniel Wilson and Sunny Roller. Medscape requires registration (which …

“How Polio Research is Helping in the Hunt for a Vaccine”

PHI’s own Daniel Wilson, PhD, was featured on the Wall Street Journal podcast, The Future of Everything. The episode was entitled “How Polio Research is Helping in the Hunt for a Vaccine.” Here is the WSJ’s synopsis: Research on a vaccine for the new coronavirus is progressing swiftly because of the legacy of scientists working on past diseases. Some of …

Coronavirus (COVID-19) and Polio Survivors

Everyone seems to be talking about, worrying about and asking questions about coronavirus, and that includes polio survivors. As we have seen this is a rapidly evolving situation and what we know today may change next week or next month. Some facts that are not likely to change are: Polio and the late effects of polio do not, in themselves, …

PHI has moved into a new office

On April 2, 2020, PHI moved into its new office located at: 50 Crestwood Executive Ctr Suite 440 St. Louis, MO 63126-1916 All other contact information (phone, fax, email) remains the same. *St. Louis County is currently under stay-at-home orders. If you are attempting to reach us by phone, please leave a voicemail message and we will return your call …