Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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PHI Welcomes Katherine DeLong to its Board of Directors

Post-Polio Health International (PHI) is pleased to welcome Katherine DeLong as the newest member of its Board of Directors. DeLong is a soon-to-be graduate of Pepperdine University working toward a BS in Business Administration, BA in Integrated Marketing Communications and minor in Applied Mathematics. Her journey with PHI began as a member of a student consulting group, where she developed …

PHI Welcomes Dr. Daniel Ryan to the Board of Directors

Post-Polio Health International (PHI) is pleased to welcome Daniel Ryan, MD, to its Board of Directors. Dr. Ryan has been the medical director of Southeastern Michigan’s post-polio clinic for over twenty years. He has spoken at numerous events regarding polio and post-polio syndrome. He is a member of many national and local medical societies, is past president of the Michigan …

PHI Welcomes New Board Member Jennifer Thieme Kehres

Post-Polio Health International (PHI) is pleased to welcome Jennifer Thieme Kehres of Amigo Mobility as the newest member of its Board of Directors. “Kehres’ experience in the mobility industry and background makes her an invaluable asset to our board and would greatly help shape our organization’s future. We are confident that her dedication and unique perspective will contribute to the …

Tele Tai Chi Study

Seeking older adults with mobility challenges! Are you interested in participating in an online, seated tai chi class? The TechSAge center at Georgia Tech and the University of Illinois Urbana-Champaign are conducting a clinical trial for ‘Tele Tai Chi’ – a virtual, seated, group Tai Chi class for older adults with long-term mobility disabilities. Participation involves: 8-week program (1-hour online classes, 2x a week, on Zoom) We are using the evidence-based Seated Tai Chi …

Make Your Voice Heard

National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) and Administration for Community Living (ACL) is developing its 2024-2029 Long-Range Plan and has been seeking input from key stakeholders, including people with disabilities and their families, researchers, service providers, and others through a series of virtual listening sessions. The next session is September 28th, 1 – 4 pm ET, …

Lauro Halstead, 1936-2022

PHI was saddened to learn of the passing of Dr. Lauro Halstead, a polio survivor and one of the foremost authorities on the late effects of polio. We will have more on Dr. Halstead’s remarkable life and career in the Fall edition of Post-Polio Health.

Final Report: Cough Assist: User Education Needs, Health Service Utilization and Outcomes

PHI recently published the results of our ninth research grant. The grant for $100,000 was awarded in 2016 to Louise Rose, RN, MN, PhD, Associate Professor, Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Ontario, Canada, and Mika Nonoyama, RRT, PhD, Assistant Professor at the University of Ontario Institute of Technology. The project was titled “Cough Assist: User Education …

Can You Afford a Home-Care Worker?

Home health care can cost over $4,000 per month. AARP shares resources and government programs to help make in home care and nursing affordable. “Planning for in-home care is a lot like the Chinese adage about planting a tree: The best time was 20 years ago, and the second best time is today. “Older Americans determined to stay in their …

Daniel J. Wilson, PhD (1949-2021)

In June of 2021, the post-polio community lost a dedicated advocate for polio survivors, Daniel J. Wilson, PhD. Dan joined PHI’s board in 2006 and served in various roles, most recently as Board President from November of 2020 until his death this past June. He was Professor of History Emeritus at Muhlenberg College in Allentown, Pennsylvania, where he taught from …

New article: Warning for COVID Long Haulers From Polio Survivors

This excellent article from Medscape features five PHI board members speaking about the long-term effects of polio what that might mean for those who had COVID. The author, Sarah DeWeerdt, spoke with post-polio physicians Frederick Maynard, Marny Eulberg, Carol Vandenakker-Albanese and Frans Nollet, along with survivors such as PHI Board President Daniel Wilson and Sunny Roller. Medscape requires registration (which …