RECONNECTING AFTER 55+ YEARS! Beverly Schmittgen, EdD “Joyce Tepley, Joyce, Tepley,” I kept repeating to myself. I KNOW her! That was my first thought after finding an article she had written for the newsletter published by the Post Polio International organization in St. Louis. I distinctly remembered that she and I had had beds next to each other in …
Shared peer advice from polio survivors about what works for them.
Share your solution:
News about people who have made significant contributions to the disability community.
Share your story:
Communicating with Grown Children
From the series, Polio Survivors Ask, by Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. Q: As I get older and accumulate more secondary conditions, it is more difficult for me to get around. Do you have any suggestions as to how to communicate my …
Support Group Dysfunction
From the series, Polio Survivors Ask, by Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. Q: I am 58 years old and I attended a support group meeting recently. I will never go back. The members were friendly enough, but the message I heard over …
More Worry as I Age
From the series, Polio Survivors Ask, by Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. Q: The older I get, the older my friends and families are, and it seems that they have one illness after another. Then there are the kids and grandkids, all with …
Partner Abuse, Part 2
“Promoting Positive Solutions,” From Post-Polio Health (Volume 30, Number 4, pages 8, 9, 10). Part 2. Dr. Machell addresses female to male and same sex partner abuse: Intimate partner violence (IPV) isn’t just about male perpetrators and female victims. Men can be abused by a female partner. And in same-sex relationships men are abused by men and women are abused by women. Abuse …
Losing Speech
“Promoting Positive Solutions,” Post-Polio Health, Volume 29, Number 2, Spring 2013 Question: I am a 62-year-old happily married mother of two. I have a history of bulbar polio and have started speech therapy for new swallowing difficulties and problems with vocal endurance. Thus far, I have been able to adjust to every change brought on by post-polio syndrome, but this new change …
What is expected of a group leader?
LEADERSHIP ∞ Nancy Baldwin Carter, Omaha, Nebraska QUESTION: “There is some question about what all is expected and not expected of the leaders of our group. We have a couple of new members who have come in and seem to think that we don’t ask for or take suggestions from anyone and that we are a three run group which we are …
Losing Members?
∞ LEADERSHIP Nancy Baldwin Carter, Omaha, Nebraska QUESTION: “Our group is down to about half a dozen members who rotate meeting at each other’s homes for lunch once a month. I’ve heard of other groups that are losing members as well. What can we do to keep our post-polio data bases from eroding to the point where we lose all contacts and …
Finding Good Information Online
∞ LEADERSHIP Nancy Baldwin Carter, Omaha, Nebraska QUESTION: “How do we help our members find good online information and use this in communicating with those in the medical community and others?” ANSWER: Finding reliable and relevant polio information online can sometimes be a challenge. The difficulty is not a paucity of information but rather the overwhelming number of possibilities to …