Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Orthotic Devices for Post-Polio Syndrome: An Orthotist’s Perspective

Brian Tiburzi

Alexander M. Miller, CPO, Evergreen Prosthetics & Orthotics, Denver, Colorado The field of orthotics is continually evolving to meet the needs of individuals experiencing upper and lower extremity weakness or deformities. In the post-polio syndrome (PPS) community, lower extremity weakness, often affecting one or both legs, is commonly addressed with orthotic devices such as Ankle-Foot Orthoses (AFOs) or Knee-Ankle-Foot Orthoses …

Moving Forward: Adapting to the Ottobock C-Brace

Brian Tiburzi

Yvonne Collery Both my mother and Linda contracted polio during the 1955 epidemic. Linda and her family lived in the apartment below us, and she and I grew up together. Linda was just 11 weeks old when she contracted polio and was left with paralysis in her right leg. Since learning to walk, she has relied on a rigid KAFO …

Canes – Pick the Right Stick

Brian Tiburzi

A cane may be adequate if you need minimal support. First determine the correct length of the cane. If it is too long and your elbow stays bent when you lean on the cane, the triceps muscle at the back of the elbow has to stay contracted. This can lead to muscle fatigue and pain in your shoulder. To prevent …

How to Use Crutches on Stairs

Brian Tiburzi

Approach the stairs and have your therapist stand by for safety until confident of abilities. Keep crutches down on lower level and do not place upward on the steps. Push down hard on the crutches with your arms. This lifts the body upward. Then, step up first with your strong leg to the first step! Bring up your weak leg …

Of Crutches and Canes

Brian Tiburzi

Have you thought about using a cane or crutch but dismissed the idea because you’d be self-conscious? Think you’ll look “disabled”? Figure that you’ve gotten along okay without walking aids so far, so why start now? Good question.I know that feeling well and talked about it in “Facing Reality.” But ask yourself if you are really getting along okay. Do …

Walkers

Brian Tiburzi

If you’re at risk of falling or have some balancing problems you might want to consider using a walker. It is imperative that your walker is properly fitted with comfortable handgrips and that it is the correct height for you. To determine the correct height, stand inside the walker, let your arms rest at your sides and match the crease …

Roll Models: Scooters and Wheelchairs

Brian Tiburzi

Many of us who had polio used canes, wheelchairs and bracing on our path to recovery and gradually were able to relinquish them. Others of us have developed different chronic conditions that have managed just fine until now without mobility equipment. But as we get older our bodies change, our symptoms escalate and daily activities use so much more energy …

Winter

Brian Tiburzi

BABY, IT IS COLD OUTSIDE! William G. Stothers Snow and bone-chilling cold are making this a brutal winter across North America. And Phil the groundhog says it will go on for another six weeks. Bad news for people stuck in this kind of weather, especially polio survivors. We know the snow-choked wheelchair wheels, snow-banked sidewalks and curb cuts, melting messes indoors, …

Orthotics

Brian Tiburzi

Orthotics is the use of braces and splints (orthoses) to biomechanically assist in supporting and stabilizing parts of the body affected by paralyzed and/or weak muscles (Bunch, 1985). Orthotics, grouped by a description of the area in which they provide support, are usually divided into three categories:  lower extremity, upper extremity, and spinal. For example, in lower extremity orthotics, foot …

The Utility of Post-Polio Bracing

Brian Tiburzi

Irwin M. Siegel, MD Patients with post-polio weakness can often benefit by using an appropriate brace. Braces can 1) provide support, 2) correct a flexible deformity, or 3) relieve pain. Usually it is best to correct a fixed deformity through stretching or surgery before applying the brace. Post-polio patients require special consideration when it comes to bracing. They usually present …