Post-polio advocates noticed that polio survivors experienced very frustrating visits to physicians when reporting new post-polio problems. Barriers included the limited amount of time a physician had for an appointment and the lack of experience of physicians in the early days. They weren’t as skilled at asking the right questions. Additionally, polio survivors knew they didn’t feel well, but hadn’t …
Shared peer advice from polio survivors about what works for them.
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Support Groups
GOALS AND LEADERSHIP WHAT ARE THEY? WHY DO IT ALONE? WHO NEEDS THEM? WHO CAN BENEFIT? IS OUR GROUP NORMAL? EN ESPAÑOL GOALS AND LEADERSHIP The goal of a support group is to empower its members with the tools necessary to make adjustments needed to continue a life of dignity and independence. Contrary to the image sometimes portrayed in the …
Ergonomics
Ergonomics is an interdisciplinary field concerned with the performance and safety of individuals at work, how people cope with the work environment, interact with machines, and, in general, negotiate their work surroundings. Applying this knowledge to all environments, tools, tasks, and jobs produces ones that are safe, comfortable, and effective. As strength and endurance decrease, the use of ergonomic principles …
Preventing Falls
SAFETY FIRST Living with a chronic condition requires a lot of adaptations. The one thing you don’t want to cope with is the effects of an injury that could have been prevented. Falls are the second leading cause of death from accidents for people of all ages and more than 200,000 people suffer a fracture of the hip each year …
Fatigue
Jane Dummer, Maryland I am qualified to speak about fatigue because I fade right after lunch. When I agreed to speak, I realized very quickly I was going to discuss something which is global, yet something I really cannot define for you. So what am I going to say? Fatigue is a normal part of living. Perhaps I can say …
Prescription for Pain
Sunny Roller, MA, Michigan New pain, muscle weakness and general fatigue are common complaints of post-polio individuals who fought polio once and won, but are now reluctantly having to return to rehabilitation after a 30-40 year reprieve. Along with muscle weakness and fatigue, new pain is the most common complaint of people with the late effects of polio. It is …
Positioning for Comfort during Work, Leisure Activities and Rest
I. INTRODUCTION Please understand that consistently using the principles discussed below is important when performing ANY activity. In other words, do not wait to use these principles just when you are in pain, but rather, use the principles all of the time. Why should you use these principles? To prevent pain and further malfunction. To maintain ease of movement during …
PPS Pain and Fatigue
Linda Cannon Rowan When I complain to my doctor about pain or fatigue, he usually tells me that I am not getting enough rest. I GET SO TIRED OF HEARING THAT I NEED TO REST! BUT I KNOW THAT I MUST! A day without pain is rare. I was told when I was first diagnosed not to do anything to …
Best Post-Polio Advice
From the series, Polio Survivors Ask, by Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. Q: We have known about the late effects of polio for almost 30 years. I’ve gotten a lot of advice during that time and wonder about other polio survivors. What’s the …
Lifestyle Changes
Making certain lifestyle changes is reported by polio survivors as the most effective treatment for the late effects of polio (Yarnell, 1998). Almost everyone who adopts such changes achieves some relief of symptoms (Westbrook & McIlwain, 1996). The change most recommended is the adoption of energy conservation techniques, which may involve the elimination, reduction, or modification of various physical activities. …
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