Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Nutritional Route to Weight Loss

Brian Tiburzi

From the series, Polio Survivors Ask, by Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. Q: I need to lose weight. My longtime post-polio weakness limits my choices of exercise. How can I enjoy going the nutritional route? A: Want some adventure in your nutritional life? …

Fear of Using a Cane

Brian Tiburzi

From the series, Polio Survivors Ask, by Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. Q: A friend who had polio told me that since he uses a cane, people give him more room so he has less fear of being bumped by others. He wishes …

Aging Well with Post-Polio Syndrome: The Benefits of Muscle Strengthening

Brian Tiburzi

Rehabilitation Research and Training Center (RRTC) on Aging with a Physical Disability (2011) Muscular Strengthening is one of the most common recommendations of physical medicine and rehabilitation for people with PPS struggling with symptoms. However, historically, any type of exercise was once thought to be bad for people with neuromuscular diseases (such as muscular dystrophy, post-polio syndrome, cerebral palsy, etc.). …

Polio’s Effects

Brian Tiburzi

GENERAL INFORMATION LETTER FOR POLIO SURVIVORS Why are “old polios” who were stable for years now losing function? What should they do about it? Jacquelin Perry, MD, DSc (Hon), Rancho Los Amigos National Rehabilitation Center, Downey, California The basic problem is that polio destroyed some of the nerve cells that activate the muscles. To the extent possible, the neurological system …

Swallowing Difficulty and the Late Effects of Polio

Brian Tiburzi

Barbara C. Sonies, PhD, CCC, BRS-S, College Park, Maryland A major polio epidemic in the mid-20th century left many survivors with a wide variety of physical limitations including problems swallowing foods. Many persons with swallowing problems also had original bulbar signs of polio including difficulty breathing, clearing the throat, speaking and singing. Some persons however, had no overt signs of …

Breast Reduction Surgery?

Brian Tiburzi

Post-Polio Health, Volume 28, Number 3, Summer 2012 Ask Dr. Maynard Frederick M. Maynard, MD Question: I had polio in 1948, and I am now 65. Adapting was less difficult due to the helpful information gathered at support group meetings. However, I am not finding information or answers that address this issue: Has breast reduction and surgical reduction of abdominal fat …

Frightened of Cortisone and Surgery

Brian Tiburzi

Post-Polio Health, Volume 29, Number 2, Spring 2013 Ask Dr. Maynard Frederick M. Maynard, MD Question: Several years ago my right ankle muscles gave out after a cortisone shot. I wear a brace to steady this leg. Now, after two bad falls, my left hip will need replacement. My current orthopedic physician wanted to give me a cortisone shot, and I …

EMGs

Brian Tiburzi

Post-Polio Health, Volume 29, Number 2, Spring 2013 Ask Dr. Maynard Frederick M. Maynard, MD Question: I am posting this question for my husband who had polio at age 2. He was affected quite seriously and was not able to stand on his own. He recovered completely, and now at age 52, is seeing signs of post-polio syndrome (PPS) that include …

Regain Strength and Muscle Mass through Exercise

Brian Tiburzi

Post-Polio Health, Volume 26, Number 4, Fall 2010 Ask Dr. Maynard Frederick M. Maynard, MD Question: I read with great interest the question and answer about knees collapsing in Vol. 26, No. 2 (www.post-polio.org/edu/pphnews/pph26-2sp10p7.pdf). I had polio at age 1. I’m told that I made a full recovery and that our local doctor used me as an example of a “miraculous” …

Worried about Father (and Mother)

Brian Tiburzi

Post-Polio Health, Volume 27, Number 1, Winter 2011. Dr. Rhoda Olkin is a Distinguished Professor of Clinical Psychology at the California School of Professional Psychology in San Francisco, as well as Executive Director of the Institute on Disability and Health Psychology. She is a polio survivor and single mother of two grown children. Dr. Stephanie T. Machell is a psychologist in …