Post-Polio Experts Present (Video Series)

These timely informational videos are presented by dedicated experts who have significant experience in managing post-polio problems and in advocating for the survivors of polio. The presenters provide information and advice to the health professionals who treat polio survivors and also to survivors and their families.

The following videos were recorded in 2014 during PHI’s 11th International Conference, “Promoting Healthy Ideas,” in St. Louis, Missouri.

Ways to Avoid Respiratory Complications of Postpoliomyelitis
John R. Bach, MD

Dr. Bach is the Medical Director of the Center for Noninvasive Mechanical Ventilation at Rutgers New Jersey Medical School in Newark, New Jersey. He has written and spoken extensively about noninvasive ventilation and neuromuscular disease.

 

Developing a Personal Philosophy about Disability
Lawrence C. Becker, PhD
Larry Becker was a Fellow of Hollins University and Professor of Philosophy Emeritus, College of William & Mary. His teaching and writing in academic philosophy focused on ethics, social and political philosophy, and legal philosophy. He had respiratory polio at the age of 13 (class of 1952), and had an association with PHI since its beginnings, serving on its board of directors from 2000-2011. His presentation connects some themes from that book to his personal reflections on living with a disability.

 

Polio and Anesthesia
Selma Calmes, MD
Dr. Calmes is an experienced anesthesiologist, now retired as Chairman and Professor, Department of Anesthesiology, Olive View-UCLA Medical Center, Sylmar, California. She has consulted on numerous surgical cases of polio survivors over the last 20 years.

 

Sleep Hygiene
William M. DeMayo, MD
Dr. DeMayo has over 30 years of clinical experience in the field of Physical Medicine and Rehabilitation. For over 15 years, he served as Medical Director of the post-polio clinic of Conemaugh Health System in Johnstown, PA. He is currently serving as Director of Physical Medicine and Rehabilitation for Specialized Rehabilitation Hospital (www.srh.ae), Abu Dhabi, United Arab Emirates.

 

Post-Polio Bracing (2016)
Marny K. Eulberg, MD
Marny Eulberg, MD, is a family medicine physician and a polio survivor. She has run a post-polio clinic in Denver, Colorado, since 1985. She has a special interest in lower extremity bracing and founded a non-profit, The Human Gait Institute, to support individuals who have a need for lower extremity bracing. She has been on the board of directors of PHI for several years and is actively involved in the Colorado Post-Polio Organization.

 

Poliomielite (Portuguese)
Sheila Jean McNeill Ingham, MD, PhD
Dr. Ingham, Universidade Federal De São Paulo, São Paulo, SP, Brazil, discusses the status of polio and post-polio in Brazil.

 

Spirituality in Disability
Cyndi Jones, MDiv
Cyndi Jones is a polio survivor and longtime advocate for people with disabilities. She has a Master of Divinity from the Episcopal Divinity School and currently in the ordination process for the Evangelical Lutheran Church of America (ELCA). In 2013 she developed “A Place at the Table” a workshop to assist churches in welcoming people with disabilities. In 2011, her paper, “Because no one will hire us, a reflection on The Laborers in the Vineyard,” was selected for presentation at the American Academy of Religion. “Will I Recognize the Image of God?” was published in 2014 in the Journal of Disability and Religion.

 

Growing Older with Grace
Audrey J. King, MA (Psych)
Audrey King is a polio survivor and retired psychologist from Toronto’s Holland Bloorview Children’s Rehabilitation Hospital. Over the years she has served on boards, consulted to many government committees, and authored several books in addition to writing and lecturing internationally on a broad range of disability issues.

 

Relationships
Stephanie T. Machell, PsyD
Dr. Stephanie T. Machell is a psychologist in independent practice in the Greater Boston (MA) area. She specializes in working with those affected by polio and other physical disabilities. Her father was a polio survivor.

 

Components of a Post-Polio Evaluation
Frederick M. Maynard, MD
Dr. Maynard is a semi-retired board-certified physiatrist with more than 35 years of experience in the evaluation of polio survivors. He founded one of the first Post-Polio Clinics at the University of Michigan Medical Center in 1983 and has written and lectured extensively about the late effects of polio. He has served on the Board of Post-Polio Health International for more than 25 years and has been involved with planning and speaking at all 11 of its international conferences. His current work has involved promoting Health and Wellness Retreats for aging polio survivors in the US and abroad.

 

Disability Affirmative Therapy
Rhoda Olkin, PhD
Dr. Olkin, Distinguished Professor, California School of Professional Psychology and Institute on Disability & Health Psychology, is a licensed psychologist and polio survivor. She trains therapists and works as a psychotherapist. Her video is an overview of an approach to working with clients with disabilities and chronic illnesses that guides therapists through the information they should gather from clients to help put disability into the proper perspective for each individual.

 

Self-Advocacy and Community Advocacy
William G. Stothers
William Stothers is a longtime editor and consultant on media and disability policy. He edited Mainstream, a national advocacy and lifestyle magazine for people with disabilities and worked at major newspapers in Toronto and San Diego. He is a past president of the Board of Directors of Post-Polio Health International.

 

Are Polioviruses playing a pathogenic role in the late consequences of polio? (English)
Antonio Toniolo, MD, FAMH
Dr. Toniolo, Professor of Medical Microbiology, University of Insubria, Varese, Italy, is the recipient of PHI’s 2014-2016 Research Award.

 

Are Polioviruses playing a pathogenic role in the late consequences of polio? (Italian)
Antonio Toniolo, MD, FAMH
Dr. Toniolo, Ordinario di Microbiologia Medica, Università dell’Insubria, Varese, Italy, è il destinatario del 2014-2016 Research Award PHI.

 

Components of Comprehensive Post-Polio Management
Carol Vandenakker-Albanese, MD
Dr. Vandenakker-Albanese is a Health Sciences Clinical Professor and the Residency Program Director, and Director in the Department of Physical Medicine and Rehabilitation; and the Director of the Post-Polio Clinic at the University of California, Davis Medical Center. She established a Post-Polio Clinic at the University of Miami in 1993. With her move to Sacramento in 2001, she established a Post-Polio Clinic at UC Davis Medical Center. She is board certified in Physical Medicine and Rehabilitation and her clinical practice encompasses diagnosis and non-operative treatment of spine conditions and post-polio related problems. Her research and publications have focused on exercise, post-polio syndrome, and aging with disability.

 

The Importance of Posture
Holly H. Wise, PT, PhD
Dr. Wise is a Professor in the Division of Physical Therapy, College of Health Professions, at the Medical University of South Carolina in Charleston. A graduate of Wake Forest University, Duke University, and the University of Miami, Dr. Wise has worked with individuals with a prior diagnosis of polio for over 30 years and has co-founded two interprofessional post-polio evaluation clinics.