Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Recovery after Breaking Femur and Patella

Brian Tiburzi

Question: I fell nine weeks ago, breaking my distal femur and patella and spraining my distal ACL. A physical therapist comes to my home every week. X-rays show my bones are healing well. This week I’m working on starting to walk stairs, but it’s extremely difficult because of my kneecap. I believe the PT is being cautious, knowing about my …

Stiff Neck and Back Problems Leading to Pain and Weakness in Arms and Shoulders

Brian Tiburzi

Question: I was diagnosed with a mild case of polio in 1952 when 12 years old. The polio affected my neck and upper back, and both recovered to the point where I didn’t have any visible physical problems. Over the years I have encountered a lot of stiff neck and back problems and was treated at pain management facilities. The …

Managing Fatigue and Poor Balance

Brian Tiburzi

Question: I am now age 89 and am plagued by extreme tiredness with sleepiness/drowsiness and terrible balance issues. My history includes a triple arthrodesis of the right ankle with a tendon transfer. My polio in 1947 was treated with the Sister Kenny Treatment—can still smell the hot, steamy wool blankets. I try to do some mostly stretching exercises and wonder …

Advice for Arm and Shoulder Weakness

Brian Tiburzi

Question: I had polio at age 5 and am now 76. I have weakness in all four limbs. My legs have been week for a long time while my arms and shoulders started getting weaker 2-3 years ago. I cannot lift my left arm past my shoulder. My right arm is better but not good. The PT here at the …

Cervical Spondylotic Myelopathy and Post-Polio Syndrome

Brian Tiburzi

Question: In cervical spondylotic myelopathy there may be muscle weakness in lower limbs and gait disturbance, so it may be confused with a post-polio syndrome in a person who has had polio. Is there some information regarding the prevalence of this pathology in elderly patients who have had polio and how to diagnose correctly and not attribute the new weakness …

Is There a Connection Between Post-Polio Syndrome and Parkinson’s Disease?

Brian Tiburzi

Question: About a year ago, I was diagnosed with Parkinson’s Disease (PD). Then recently, when providing medical history to a new eye doctor and reporting that I had polio as a child, I learned from him that he and a colleague authored a letter which was published in NEJM (New England Journal of Medicine) about polio and PD. My father …

How Should I Manage Lymphedema in my Polio Leg?

Brian Tiburzi

Question: After several weeks when my polio-affected right leg began to swell, beginning at the foot and now up into the knee, a vascular physician diagnosed the condition as lymphedema and referred me to physical therapy. The swelling decreases only slightly after sleeping all night, even with my legs elevated. My ability to exercise (walk) is not practical having great …