Shared peer advice from polio survivors about what works for them.

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Acupuncture Therapy in Cases of Polio; Is it Now Commonly Accepted that Polio Actually Affected All of the Muscles in the Body?

Brian Tiburzi

Question: I am a 77-year-old woman who had polio at the age of nine. I lost the use of my legs, but, with intensive physical therapy, I made a decent recovery enabling me to lead a pretty normal life—minus things like skiing, running, etc. I just had an evaluation at Rancho Los Amigos in California and the recommendation is that …

Is There Any Therapy or Other Options to Get the Atrophied Leg Warm?

Brian Tiburzi

Question: I had non-paralytic polio in 1949 when I was 2. I now wear two leg braces; one on my polio leg for drop foot and the other one on my left leg because I started dragging that foot. My right leg is always very cold to the touch even though it never feels cold to me unless I touch …

What are the Symptoms in Patients with Post-Polio Syndrome with Facial Involvement?

Brian Tiburzi

Question: What are the symptoms in patients with post-polio syndrome with facial involvement? I am a PT with facial nerve involvement due to polio. Answer: Regarding facial nerve involvement after poliomyelitis: It is not common but also not rare. I have seen well over a dozen patients with significant one-sided facial weakness secondary to polio. I have not seen anyone …

Is There Any Difference in PPS Symptoms in Patients that Contracted the Disease Through the Vaccine Versus Naturally?

Brian Tiburzi

Question: I had polio at age 5 in 1968 apparently contracted from the oral polio vaccine. The acute illness lasted about a month, then a slow recovery ensued (upper and lower right limb involvement) that took about a year. Is there any difference between PPS symptoms in patients who have contracted the disease through vaccine and those who contracted it …

Since Polio and Shingles are Both Nerve Diseases are There Any Special Precautions, Medicines, or Treatments to be Had?

Brian Tiburzi

Question: My 83-year-old wife had bulbar polio when she was 17. She is now wheelchair-bound and is suffering severe pain from shingles. My question is: Since polio and shingles are both nerve diseases is there any special precaution, medicine or treatment she should have? Answer: Although polio and shingles are both a result of virus infections, they are not related …

Are There Any Nutritional Issues Specifically for Polio Survivors, Specific Dietary Needs or Concerns, or Any Beneficial Supplements?

Brian Tiburzi

Question: Are there any nutritional issues that polio survivors should pay special attention to? Are there any particular dietary needs or concerns? Any supplements that are beneficial? Answer: There are several important nutritional issues for people who had polio. No other issue is more important to good health than optimal nutrition, and no other is more controversial and little studied …

Could Polio, Post-Polio, and POTS Syndrome Have Any Connection and/or Relationship?

Brian Tiburzi

Question: I had all three types of polio. I was paralyzed from my throat down and was unconscious. Now I am 69 years old and have been diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS). Could polio, post-polio and POTS Syndrome have any connection and/or relationship? Answer: POTS syndrome causes the heart to race to compensate for an excessive drop of …

Is There Any Difference in PPS Symptoms in Patients that Contracted the Disease Through the Vaccine Versus Naturally?

Brian Tiburzi

Question: I had polio at age 5 in 1968 apparently contracted from the oral polio vaccine. The acute illness lasted about a month, then a slow recovery ensued (upper and lower right limb involvement) that took about a year. Is there any difference between PPS symptoms in patients who have contracted the disease through vaccine and those who contracted it …

Does PPS Cause Muscle Loss Later in Life or is Atrophy Caused by the Initial Polio Attack?

Brian Tiburzi

Question: Does PPS cause muscle loss later in life or is atrophy caused by the initial polio attack? Answer: Dr. Maynard: Initial polio infection damage to nerves may result in a muscle’s atrophy (smaller or shrunken size) if a sufficiently large percent of nerves to an individual muscle died off. However, further dying off of damaged but not dead nerve …