Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Can a Concussion Cause the Onset of Post-Polio Syndrome?

Brian Tiburzi

Question: Can a Grade 3 concussion cause the onset of post-polio syndrome (PPS)? I developed the symptoms during recovery from a concussion and have been diagnosed as having PPS. Answer: Regarding your question about a Grade 3 concussion (the most serious level): After headaches and cognitive problems (poor concentration, attention and memory), fatigue is one of the most common post-concussion …

What is a Polio Doctor?

Brian Tiburzi

Question: People in my post-polio support group say I need to see a “polio doctor.” What is a polio doctor? Do you agree that polio survivors must see a physician with such a designation? Do I need my old medical records? Answer: There is no official certification for a “polio doctor.” I believe the most common use of this informal …

Is There a Way to Differentiate Between Post-Polio Weakness and Normal Aging Weakness?

Brian Tiburzi

Question: I read about muscle wasting in people who age (sarcopenia) in the syndicated column of “Dr. Donohue.” As a 78-year-old polio survivor who is getting weaker, I am not sure if it is post-polio weakness or aging weakness. Is there a way to tell the difference? Does it matter? Are the management recommendations different for each cause? Answer: Sarcopenia …

AFM (acute flaccid myelitis) and Polio Survivors

Brian Tiburzi

Question: There have recently been several media reports about Americans developing a “polio-like illness” known as Acute Flaccid Myelitis (AFM) that leaves them partially paralyzed. Because PHI has received many calls from members about this topic, Dr. Fred Maynard was asked to write about what AFM is and to share his thoughts about how polio survivors might be able to …