Shared peer advice from polio survivors about what works for them.

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Cervical Spondylotic Myelopathy and Post-Polio Syndrome

Brian Tiburzi

Question: In cervical spondylotic myelopathy there may be muscle weakness in lower limbs and gait disturbance, so it may be confused with a post-polio syndrome in a person who has had polio. Is there some information regarding the prevalence of this pathology in elderly patients who have had polio and how to diagnose correctly and not attribute the new weakness …

Is There a Connection Between Post-Polio Syndrome and Parkinson’s Disease?

Brian Tiburzi

Question: About a year ago, I was diagnosed with Parkinson’s Disease (PD). Then recently, when providing medical history to a new eye doctor and reporting that I had polio as a child, I learned from him that he and a colleague authored a letter which was published in NEJM (New England Journal of Medicine) about polio and PD. My father …

Will a Viral Infection Take Longer to Clear Up in Those with Post-Polio Syndrome?

Brian Tiburzi

Question: I have post-polio syndrome, and I have also been diagnosed with a viral infection. Will the viral infection take longer to clear up since I have post-polio syndrome? Answer: Recovery time after viral infections in polio survivors has not been studied. There is no reason to expect that the basic healing mechanisms of the body are altered as a …

Is There a Link Between Post-Polio and High Blood Pressure?

Brian Tiburzi

Question: I contracted polio in 1984, when I was 3 years old. In 2009, I discovered that I had very high blood pressure with figures ranging between 160/90 and 200/110. I have been on medication since then but there is no change thus far. At times I feel so weak after taking medication. My question: Is there a link between …

How Does Fatigue Affect People Who Have Had Polio?

Brian Tiburzi

Question: I had polio in both legs at age 10 in 1953 and was unable to walk for a year. With therapy and exercise, I pretty well recovered in one leg and can walk without help. How does fatigue affect people who have had polio? I’m constantly tired. A sleep study shows some sleep apnea and some restless leg syndrome …

Advice for Muscle Atrophy in PPSers Who Use Wheelchairs

Brian Tiburzi

Question: I have been having a LOT of pain in my back through my butt into my lower back. I looked up muscle groups and think I see what is causing the problem. I sit in at my desk nine or so hours six days a week in order to survive financially. I never realized sitting in a wheelchair could …

Do You Know of Any Cases of People with PPS and ALS?

Brian Tiburzi

Question: I had paralytic polio 64 years ago at the age of 13 months. My left leg had major paralysis and a small amount to my right leg. I always walked with a severe limp. I was diagnosed 25 years ago with PPS as I was developing new weakness in my legs. Four years ago, swallowing began to bother me …

How Do You Feel About the Pain Patch Duragesic?

Brian Tiburzi

Question: I am now 76, had polio when I was 4. Since post-polio syndrome (PPS) hit me, I needed a leg brace and walk with two canes. I can never remember a day without pain, but now it seems to have spread all over my body, not just my legs. My question is: How do you feel about the pain …