Shared peer advice from polio survivors about what works for them.

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Should I “Save My Strength”, and Save it for What?

Brian Tiburzi

Question: I am 69 and had polio in my right foot when I was 20 months old. I have had tendon transplants, heel cord lengthening surgery, and some toes fused. I wore a short leg brace following surgeries when I was eight years old at Warm Springs in Georgia. I had five children and have always been active, e.g., marched …

Could Polio, Post-Polio, and POTS Syndrome Have Any Connection and/or Relationship?

Brian Tiburzi

Question: I had all three types of polio. I was paralyzed from my throat down and was unconscious. Now I am 69 years old and have been diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS). Could polio, post-polio and POTS Syndrome have any connection and/or relationship? Answer: POTS syndrome causes the heart to race to compensate for an excessive drop of …

Could the Late Effects of Polio Cause Leg Swelling?

Brian Tiburzi

Question: I had polio in 1940. With treatment and exercise I was able to live a “normal” life and taught school for many years. At age 50, I started having new weakness. I am now 79 and my legs have shown greater weakness. I wear a full brace on my left leg and a short brace on my right leg. …

Is it Possible for Post-Polio Syndrome to be Causing Shortness of Breath?

Brian Tiburzi

Question: I am 83 and had polio when I was 6, affecting my right leg. I received the Sister Kenny treatment in St Michael’s Hospital in Newark, NJ in the spring of 1942. My leg is 1/2 inch shorter and one of my quad muscles and my calf atrophied. I have led a pretty normal life with one weak leg. …

Does Denervation Continue with Post-Polio Syndrome?

Brian Tiburzi

Question: I am aware that as polio survivors recovered from the initial bout with polio, we went through a process called denervation. Does this process of losing anterior horn cells (AHCs) and establishing new nerve pathways continue with post-polio syndrome? A: Denervation is actually not a process but a condition of muscle that has lost its connection to a motor …