Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Advice on the Use of Muscle Relaxants to Treat Muscle Spasms

Brian Tiburzi

QUESTION: Last month I went to the ER for severe muscle spasm pain in my thigh. While there, I got an injection of a muscle relaxant in that thigh and also a 50 mg dose of Tramadol. Symptoms improved in a few hours, but I don’t want to take Tramadol again—it made me feel weak and faint. The doctor sent …

Sedation Options During an Endoscopy

Brian Tiburzi

QUESTION: I am scheduled for an endoscopy soon. Should I be concerned about anesthesia during this procedure? Answer from Marny Eulberg, MD: Most gastroenterologists technically don’t use anesthesia when they do endoscopies. Instead, they use medications that create “conscious sedation,” which means the patient will not remember what happened, but the patient can still respond to commands such as “turn …

Are GLP-1 Medications Safe for Polio Survivors?

Brian Tiburzi

Question: For the past 12 months, I have been taking Mounjaro for type 2 diabetes and weight loss. I am 69 years old, have post-polio syndrome, and weigh 215 lbs., down from a maximum of about 250 lbs. My objective is to reduce my weight to around 180. I have felt better in general from taking the weight loss drug, …

Are Gabapentin or Pregabalin Effective for Post-Polio Neurological Damage?

Brian Tiburzi

Question: Are gabapentin or pregabalin effective medications for post-polio neurological damage, the type of damage that leads to leg and hand muscle cramps? Answer: Gabapentin and pregabalin are only approved for control of seizures and fibromyalgia (in the case of pregabalin). There are no studies supporting their effective-ness for leg cramps in post-polio survivors or others. Gabapentin is the most …

Are There Any New Medicines That Can Improve Muscle Functioning in Those with Post-Polio Syndrome?

Brian Tiburzi

Question: I am a 61-year-old female who has recently been diagnosed with post-polio syndrome. I am looking for the latest research on improving muscle function in the affected limb. Are there new medicines that can improve muscle functioning? Answer: Research studies have demonstrated that muscle strength and endurance can be improved among polio survivors, even those diagnosed with PPS, through …

Should Polio Survivors Take Beta Blockers and Do They Work for Atrial Fibrillation?

Brian Tiburzi

Question: I’m interested in finding out if polio survivors should or should not take beta blockers. I have atrial fibrillation and the doctors keep trying me on beta blockers and I have trouble taking them. Do they work for atrial fibrillation? Answer: Some polio survivors can tolerate, and benefit from, taking beta blockers, but many are unable to tolerate them …

Shoulder Replacement in Polio Survivors.

Brian Tiburzi

Question: I have a severe rotator cuff tear and an orthopedic surgeon has recommended a shoulder replacement because of the severity of the tear and the presence of significant arthritis. I had polio in my right leg and use my left leg to lift/stabilize myself on crutches. Apparently the increased dependency has weakened my arms and, perhaps, injured them. The …

Do Those with Post-Polio Syndrome Need Higher Medication Doses?

Brian Tiburzi

Question: My father-in-law is 88 years old and has post-polio syndrome. He has had trouble sleeping for the past several years, and he claims that it “takes more medication for people with post-polio syndrome.” My wife is his caregiver and controls his medications so he will not overdose. What is your professional opinion? Answer: Your father-in-law is mistaken about need …

Muscle Regeneration in Polio Survivors and Bracing

Brian Tiburzi

Question: I am a polio survivor with PPS. Recently I began to suffer severe knee instability, but a sports medicine specialist recommended against braces, saying they would inhibit the muscles from regenerating. It seems to me that polio-atrophied muscles will not regenerate anyway and that braces would at least help to prevent collapse. Your thoughts? Answer: If your knee instability …