Shared peer advice from polio survivors about what works for them.

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Is Post-Polio Syndrome Life-Threatening, Will the Effects Intensify, and Does it Affect the Brain’s Ability to Function in Speech, Sight, and Thought Processes?

Brian Tiburzi

Question: Often we polio survivors have very few options that are helpful in understanding our circumstances and what direction to take. Thank you for being available to provide this important service. Here is my question in three parts. When I read The Polio Paradox by Richard L. Bruno, PhD, he assured us that post-polio syndrome (PPS) is not life threatening. …

Could Polio, Post-Polio, and POTS Syndrome Have Any Connection and/or Relationship?

Brian Tiburzi

Question: I had all three types of polio. I was paralyzed from my throat down and was unconscious. Now I am 69 years old and have been diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS). Could polio, post-polio and POTS Syndrome have any connection and/or relationship? Answer: POTS syndrome causes the heart to race to compensate for an excessive drop of …

Does PPS Cause Muscle Loss Later in Life or is Atrophy Caused by the Initial Polio Attack?

Brian Tiburzi

Question: Does PPS cause muscle loss later in life or is atrophy caused by the initial polio attack? Answer: Dr. Maynard: Initial polio infection damage to nerves may result in a muscle’s atrophy (smaller or shrunken size) if a sufficiently large percent of nerves to an individual muscle died off. However, further dying off of damaged but not dead nerve …

Electrical Stimulation in Treating Polio Survivors

Brian Tiburzi

Question: I had polio in May 1951 at the age of eleven months. I used long leg braces and crutches to ambulate. I started experiencing fatigue and muscle pain in my shoulders and lower back when I was about 50 years old. I started using a scooter occasionally and gradually transitioned to a power wheelchair full-time when I started having …