Shared peer advice from polio survivors about what works for them.

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Will Individuals Who Have Had Mild Bulbar Polio with No Functional Limb Impacts Develop Post-Polio Limb Weakness?

Brian Tiburzi

Question: Will individuals who had mild bulbar polio with no functional limb impacts develop post-polio limb weakness? Is anything known about extra risks to recovery from major orthopedic surgery such as knee replacement to post-polio individuals? Marny Eulberg, MD: It is possible that persons who had mild bulbar polio but no functional limb weakness could develop post-polio limb weakness over …

Stiff Neck and Back Problems Leading to Pain and Weakness in Arms and Shoulders

Brian Tiburzi

Question: I was diagnosed with a mild case of polio in 1952 when 12 years old. The polio affected my neck and upper back, and both recovered to the point where I didn’t have any visible physical problems. Over the years I have encountered a lot of stiff neck and back problems and was treated at pain management facilities. The …

Preventing Further Deterioration

Brian Tiburzi

Question: I am now age 89 and am plagued by extreme tiredness with sleepiness/drowsiness and terrible balance issues. My history includes a triple arthrodesis of the right ankle with a tendon transfer. My polio in 1947 was treated with the Sister Kenny Treatment—can still smell the hot, steamy wool blankets. I try to do some mostly stretching exercises and wonder …

Advice for Arm and Shoulder Weakness

Brian Tiburzi

Question: I had polio at age 5 and am now 76. I have weakness in all four limbs. My legs have been week for a long time while my arms and shoulders started getting weaker 2-3 years ago. I cannot lift my left arm past my shoulder. My right arm is better but not good. The PT here at the …

Are There Any New Medicines That Can Improve Muscle Functioning in Those with Post-Polio Syndrome?

Brian Tiburzi

Question: I am a 61-year-old female who has recently been diagnosed with post-polio syndrome. I am looking for the latest research on improving muscle function in the affected limb. Are there new medicines that can improve muscle functioning? Answer: Research studies have demonstrated that muscle strength and endurance can be improved among polio survivors, even those diagnosed with PPS, through …

Have Studies Been Done to Determine if Polio Affects Sexual Functioning?

Brian Tiburzi

Question: Have any studies been done to determine if polio affects sexual functioning? Answer: I am unaware of any medical studies of sexual function in polio survivors. Conventional medical opinion is that polio did not affect sexual functioning of survivors, and the history of normal potency in men who have had polio and fertility among women polio survivors would support …

Will a Viral Infection Take Longer to Clear Up in Those with Post-Polio Syndrome?

Brian Tiburzi

Question: I have post-polio syndrome, and I have also been diagnosed with a viral infection. Will the viral infection take longer to clear up since I have post-polio syndrome? Answer: Recovery time after viral infections in polio survivors has not been studied. There is no reason to expect that the basic healing mechanisms of the body are altered as a …

Is There a Connection Between Weak Leg Muscles and Using Toes More to Walk?

Brian Tiburzi

Question: As my leg muscles become weaker, I notice that now I use my toes more than my whole foot when I walk. A polio friend of mine has made the same observation about his method of walking. Is this coincidence or is there a connection between weak leg muscles and using toes more to walk? GARY FREDERICKS Answer: The …

Electrical Stimulation in Treating Polio Survivors

Brian Tiburzi

Question: I had polio in May 1951 at the age of eleven months. I used long leg braces and crutches to ambulate. I started experiencing fatigue and muscle pain in my shoulders and lower back when I was about 50 years old. I started using a scooter occasionally and gradually transitioned to a power wheelchair full-time when I started having …

Is it Possible for Post-Polio Syndrome to be Causing Shortness of Breath?

Brian Tiburzi

Question: I am 83 and had polio when I was 6, affecting my right leg. I received the Sister Kenny treatment in St Michael’s Hospital in Newark, NJ in the spring of 1942. My leg is 1/2 inch shorter and one of my quad muscles and my calf atrophied. I have led a pretty normal life with one weak leg. …