Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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August Town Hall

Registration is now open for the next PHI Town Hall, part of our 2023 Educational Series. Join PHI and author Candy Harrington on Tuesday, August 22, 2023, at 1:00 pm CDT, as we discuss “Accessible Travel.” This lecture is available to PHI and IVUN members at no cost. Space is limited, so be sure to register early! To reserve your …

Tele Tai Chi Study

Seeking older adults with mobility challenges! Are you interested in participating in an online, seated tai chi class? The TechSAge center at Georgia Tech and the University of Illinois Urbana-Champaign are conducting a clinical trial for ‘Tele Tai Chi’ – a virtual, seated, group Tai Chi class for older adults with long-term mobility disabilities. Participation involves: 8-week program (1-hour online classes, 2x a week, on Zoom) We are using the evidence-based Seated Tai Chi …

Make Your Voice Heard

National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) and Administration for Community Living (ACL) is developing its 2024-2029 Long-Range Plan and has been seeking input from key stakeholders, including people with disabilities and their families, researchers, service providers, and others through a series of virtual listening sessions. The next session is September 28th, 1 – 4 pm ET, …

Lauro Halstead, 1936-2022

PHI was saddened to learn of the passing of Dr. Lauro Halstead, a polio survivor and one of the foremost authorities on the late effects of polio. We will have more on Dr. Halstead’s remarkable life and career in the Fall edition of Post-Polio Health.

Final Report: Cough Assist: User Education Needs, Health Service Utilization and Outcomes

PHI recently published the results of our ninth research grant. The grant for $100,000 was awarded in 2016 to Louise Rose, RN, MN, PhD, Associate Professor, Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Ontario, Canada, and Mika Nonoyama, RRT, PhD, Assistant Professor at the University of Ontario Institute of Technology. The project was titled “Cough Assist: User Education …

Can You Afford a Home-Care Worker?

Home health care can cost over $4,000 per month. AARP shares resources and government programs to help make in home care and nursing affordable. “Planning for in-home care is a lot like the Chinese adage about planting a tree: The best time was 20 years ago, and the second best time is today. “Older Americans determined to stay in their …

Daniel J. Wilson, PhD (1949-2021)

In June of 2021, the post-polio community lost a dedicated advocate for polio survivors, Daniel J. Wilson, PhD. Dan joined PHI’s board in 2006 and served in various roles, most recently as Board President from November of 2020 until his death this past June. He was Professor of History Emeritus at Muhlenberg College in Allentown, Pennsylvania, where he taught from …

New article: Warning for COVID Long Haulers From Polio Survivors

This excellent article from Medscape features five PHI board members speaking about the long-term effects of polio what that might mean for those who had COVID. The author, Sarah DeWeerdt, spoke with post-polio physicians Frederick Maynard, Marny Eulberg, Carol Vandenakker-Albanese and Frans Nollet, along with survivors such as PHI Board President Daniel Wilson and Sunny Roller. Medscape requires registration (which …

Post-Polio Experts Present (Video Series)

These timely informational videos are presented by dedicated experts who have significant experience in managing post-polio problems and in advocating for the survivors of polio. The presenters provide information and advice to the health professionals who treat polio survivors and also to survivors and their families. The following videos were recorded in 2014 during PHI’s 11th International Conference, “Promoting Healthy …