Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Final Report: Cough Assist: User Education Needs, Health Service Utilization and Outcomes

PHI recently published the results of our ninth research grant. The grant for $100,000 was awarded in 2016 to Louise Rose, RN, MN, PhD, Associate Professor, Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Ontario, Canada, and Mika Nonoyama, RRT, PhD, Assistant Professor at the University of Ontario Institute of Technology. The project was titled “Cough Assist: User Education …

Can You Afford a Home-Care Worker?

Home health care can cost over $4,000 per month. AARP shares resources and government programs to help make in home care and nursing affordable. “Planning for in-home care is a lot like the Chinese adage about planting a tree: The best time was 20 years ago, and the second best time is today. “Older Americans determined to stay in their …

Daniel J. Wilson, PhD (1949-2021)

In June of 2021, the post-polio community lost a dedicated advocate for polio survivors, Daniel J. Wilson, PhD. Dan joined PHI’s board in 2006 and served in various roles, most recently as Board President from November of 2020 until his death this past June. He was Professor of History Emeritus at Muhlenberg College in Allentown, Pennsylvania, where he taught from …

New article: Warning for COVID Long Haulers From Polio Survivors

This excellent article from Medscape features five PHI board members speaking about the long-term effects of polio what that might mean for those who had COVID. The author, Sarah DeWeerdt, spoke with post-polio physicians Frederick Maynard, Marny Eulberg, Carol Vandenakker-Albanese and Frans Nollet, along with survivors such as PHI Board President Daniel Wilson and Sunny Roller. Medscape requires registration (which …

Post-Polio Experts Present (Video Series)

These timely informational videos are presented by dedicated experts who have significant experience in managing post-polio problems and in advocating for the survivors of polio. The presenters provide information and advice to the health professionals who treat polio survivors and also to survivors and their families. The following videos were recorded in 2014 during PHI’s 11th International Conference, “Promoting Healthy …

“How Polio Research is Helping in the Hunt for a Vaccine”

PHI’s own Daniel Wilson, PhD, was featured on the Wall Street Journal podcast, The Future of Everything. The episode was entitled “How Polio Research is Helping in the Hunt for a Vaccine.” Here is the WSJ’s synopsis: Research on a vaccine for the new coronavirus is progressing swiftly because of the legacy of scientists working on past diseases. Some of …

Coronavirus (COVID-19) and Polio Survivors

Everyone seems to be talking about, worrying about and asking questions about coronavirus, and that includes polio survivors. As we have seen this is a rapidly evolving situation and what we know today may change next week or next month. Some facts that are not likely to change are: Polio and the late effects of polio do not, in themselves, …

Post-Polio Task Force

Post-Polio Syndrome (PPS) is a commonly misunderstood disorder that causes fatigue, weakness, and pain in survivors of acute paralytic poliomyelitis, commonly known as polio. In response to the emergence of PPS, an expert panel – the Post-Polio Task Force – was convened in order to promote awareness and clarity, and advance medical knowledge of this disease. The Post-Polio Task Force …

Anesthesia

PHI has published many articles over the years in the topic of anesthesia. Polio survivors might understandably be wary of receiving anesthesia. However, with the proper precautions and preparation, anesthesia can be safely administered to post-polio patients. The articles below can help you plan for surgery. Please always consult your physician if you have any questions. Safe, Successful Surgery Starts …