A Valuable Resource for Polio Survivors: The National Paralysis Resource Center

At Post-Polio Health International, we are always on the lookout for high-quality resources that support our members in living informed, independent and empowered lives. One such resource is the National Paralysis Resource Center (NPRC), operated by the Christopher & Dana Reeve Foundation.

The NPRC is designed to provide practical, day-to-day support for individuals living with paralysis—no matter the cause—and their caregivers. Whether one is dealing with a recent spinal cord injury or navigating the late effects of polio, the NPRC offers resources tailored to help people live full, independent lives. You may associate the Christopher & Dana Reeve Foundation with spinal cord injury, but many of the issues they address—such as mobility challenges, respiratory problems, acquiring assistive technology, and navigating long-term disability—can benefit polio survivors, as well.

WHAT RESOURCES ARE AVAILABLE?

Paralysis Resource Guide

This 392-page guide is the Reeve Foundation’s most comprehensive resource—and one of the most useful tools we’ve seen for anyone navigating life with a mobility-limiting condition. Although it’s not tailored specifically to polio (though PPS is mentioned in places throughout the guide), it covers a wide range of topics highly relevant to our community.

It offers clear, reliable information on managing common challenges like fatigue, chronic pain and respiratory issues. The guide also includes sections on exercise and nutrition for those living with paralysis. For those navigating disability benefits, Medicare or financial planning later in life, it breaks down complex systems into understandable steps.

The section “Tools and Technology” covers adaptive devices, wheelchairs, scooters, home modifications and adaptive driving, with practical advice on choosing the right options and accessing them affordably.

Whether you’re just beginning to experience the late effects of polio or have been managing its impact for many years, the Paralysis Resource Guide provides trusted, practical support to help you live with greater safety, confidence and dignity. Download or request a copy here: www.christopherreeve.org/paralysis-resource-guide

Patient Education Booklets

In addition to the full guide, the NPRC offers focused, easy-to-read booklets that dive into specific issues. Among the most relevant for polio survivors:

Pain Management

This booklet outlines the different types of pain associated with paralysis—neuropathic, musculoskeletal, visceral and psychological—and how each is treated. Polio survivors dealing with chronic pain may find the section on prevention and self-care particularly helpful.

Advocacy & Disability Rights

The Advocacy & Disability Rights fact sheet is a helpful directory of organizations that support the rights and needs of people with disabilities. While not a comprehensive guide to advocacy itself, it serves as a valuable resource for individuals looking to get involved, speak up for their rights, or connect with others doing similar work. The fact sheet includes national groups focused on everything from legal advocacy and disability policy to access to healthcare, assistive technology and independent living.

Aging—Senior Health Resources

This booklet provides a curated list of organizations, government programs and online tools that support older adults, particularly those living with a disability. It can connect you with organizations able to assist with housing modifications, transportation assistance, elder abuse prevention, financial protection and independent living.

Assistive Technology

This booklet outlines a wide range of tools—from power wheelchairs and computer access software to low-tech aids like canes and magnifiers—and offers practical information on how to identify, access and fund the right technology for your needs. The guide includes links to state Assistive Technology Centers, vocational rehabilitation services, ABLE accounts and nonprofit programs, all of which can provide assessments, equipment loans and financial support.

View and download these and other booklets here: www.christopherreeve.org/booklets

Information Specialists

For personalized support, you can contact the NPRC’s Information Specialists—trained staff who can help you find resources, services or answers to complex questions. They are a great point of contact for anyone living with paralysis needing help accessing equipment, understanding benefits or exploring care options.

Call 800-539-7309

Email info@ChristopherReeve.org

WHY THIS MATTERS FOR PHI MEMBERS

Even though these resources weren’t developed specifically for polio survivors, the overlap in topics and challenges is significant. Their primary goals, fostering involvement in the community, promoting health, and improving quality of life for those dealing with a physical disability, align closely with our mission at PHI.

Whether you’re trying to locate resources, adapt your environment, or plan for the future, the NPRC’s materials can offer insight, guidance and peace of mind. We encourage all PHI members to explore what the National Paralysis Resource Center has to offer. You may be surprised at how much of it speaks directly to your experience.