Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Post-Polio in Jerusalem (2012)

Brian Tiburzi

PHI awarded $25,000 to the Hadassah Medical Center in Jerusalem. The 2011 study was called Characteristics of poliomyelitis and post-polio patients among Jews and Arabs in Jerusalem under the leadership of Zeev Meiner, MD, Principal Investigator, Department of Physical Medicine and Rehabilitation, Hadassah Medical Center, Jerusalem, Israel. Dr. Meiner’s co-investigators included Isabella Schwartz, MD, Head of the Department of Physical Medicine and …

Don’t Ignore Pressure Sores

Brian Tiburzi

Mary Ann Buckingham had polio when she was 12 and walked using braces and crutches. Now 73, she started using a wheelchair about 20 years ago when her arms became too weak to use crutches. As a polio support group leader for 10 years, she was well aware of the danger of pressure sores and took preventive measures to avoid …

Navigating the Seating and Mobility World with Post-Polio

Brian Tiburzi

Sara Kraft, PT, DPT, NCS, ATP, Assistant Professor, Medical University of South Carolina, Division of Physical Therapy, College of Health Professions, kraftsv@musc.edu Navigating the seating and mobility world can be daunting for many with post-polio syndrome. Issues with scoliosis, back pain and even pressure problems can be quite serious for the person living with post-polio. If using a wheelchair, the solutions …

Partner Abuse, Part 2

Brian Tiburzi

“Promoting Positive Solutions,” From Post-Polio Health (Volume 30, Number 4, pages 8, 9, 10). Part 2. Dr. Machell addresses female to male and same sex partner abuse: Intimate partner violence (IPV) isn’t just about male perpetrators and female victims. Men can be abused by a female partner. And in same-sex relationships men are abused by men and women are abused by women. Abuse …

Partner Abuse, Part 1

Brian Tiburzi

“Promoting Positive Solutions,” From Post-Polio Health (Volume 30, Number 4, pages 8, 9, 10). Part 1. Dr. Olkin addresses male to female partner abuse in heterosexual relationships: If you are being abused by a partner, I want to say two things to you right at the start: (a) You are not alone; (b) It is not your fault. And the third thing …

Benefits of Antidepressants for Pain

Brian Tiburzi

Post-Polio Health, Volume 26, Number 2, Spring 2010 Ask Dr. Maynard Frederick M. Maynard, MD Question: Has there ever been a study of whether antidepressants help relieve muscular pain and fatigue? Is it a plausible treatment for people who have had polio? Answer: There have been studies showing reduction of fatigue and pain (not specifically muscular pain) among depressed patients treated with antidepressant …

Don’t Tell Anyone About Your Polio

Brian Tiburzi

“Promoting Positive Solutions,” Post-Polio Health, Volume 28, Number 3, Dr. Stephanie T. Machell Question: I found out I had polio when I was 55 years old. My mother’s explanation was that “the doctor told me not to tell anyone.” Can you help me understand why this was told to parents? Answer: Your experience is not an unusual one. I’ve had many clients who …

Pain and Using Wheelchair

Brian Tiburzi

Post-Polio Health, Volume 28, Number 1, Winter 2012 Ask Dr. Maynard Frederick M. Maynard, MD“Ask Dr. Maynard,” Post-Polio Health, Volume 28, Number 1, Winter 2012 Question: I have been having a LOT of pain through my butt into my lower back. I looked up muscle groups and think I see what is causing the problem. I sit at my desk nine or so hours …

Breast Reduction Surgery?

Brian Tiburzi

Post-Polio Health, Volume 28, Number 3, Summer 2012 Ask Dr. Maynard Frederick M. Maynard, MD Question: I had polio in 1948, and I am now 65. Adapting was less difficult due to the helpful information gathered at support group meetings. However, I am not finding information or answers that address this issue: Has breast reduction and surgical reduction of abdominal fat …

A Gentle Death, Part I

Brian Tiburzi

Part I of a three part series published in Post-Polio Health, (Volume 29, Number 2) in 2013. Nancy Baldwin Carter, BA, MEd Psych, Omaha, Nebraska My mother has been on my mind. She’s been gone now for ten years. Death finally came to her after several merciless years of progressive suffering and pain in the nursing home she had selected to …