Question: I’m interested in finding out if polio survivors should or should not take beta blockers. I have atrial fibrillation and the doctors keep trying me on beta blockers and I have trouble taking them. Do they work for atrial fibrillation? Answer: Some polio survivors can tolerate, and benefit from, taking beta blockers, but many are unable to tolerate them …
Shared peer advice from polio survivors about what works for them.
Share your solution:
News about people who have made significant contributions to the disability community.
Share your story:
Since Polio and Shingles are Both Nerve Diseases are There Any Special Precautions, Medicines, or Treatments to be Had?
Question: My 83-year-old wife had bulbar polio when she was 17. She is now wheelchair-bound and is suffering severe pain from shingles. My question is: Since polio and shingles are both nerve diseases is there any special precaution, medicine or treatment she should have? Answer: Although polio and shingles are both a result of virus infections, they are not related …
Is There a Link Between Post-Polio and High Blood Pressure?
Question: I contracted polio in 1984, when I was 3 years old. In 2009, I discovered that I had very high blood pressure with figures ranging between 160/90 and 200/110. I have been on medication since then but there is no change thus far. At times I feel so weak after taking medication. My question: Is there a link between …
How Does Fatigue Affect People Who Have Had Polio?
Question: I had polio in both legs at age 10 in 1953 and was unable to walk for a year. With therapy and exercise, I pretty well recovered in one leg and can walk without help. How does fatigue affect people who have had polio? I’m constantly tired. A sleep study shows some sleep apnea and some restless leg syndrome …
Could Childhood Polio Cause an Old Injury to the Frontal Lobe?
Question: I recently came down with Bell’s Palsy. To rule out a stroke, I had an MRI. This showed some, what was thought to be, old injury. I don’t ever remember having any such thing. It is in the right front lobe. I had polio in 1949 at the age of 2, and I now have PPS. The polio affected …
Can Post-Polio Syndrome be the Cause of a Nerve Ending Problem Over the Stomach Region?
Question: Can post-polio syndrome (PPS) be the cause of a nerve ending problem over the stomach region? I have annoying, tingling pains over the stomach region at about skin level or just below. It continues on and off throughout the day but not serious enough to wake me at night. The doctors I have visited can’t seem to find a …
Advice for Muscle Atrophy in PPSers Who Use Wheelchairs
Question: I have been having a LOT of pain in my back through my butt into my lower back. I looked up muscle groups and think I see what is causing the problem. I sit in at my desk nine or so hours six days a week in order to survive financially. I never realized sitting in a wheelchair could …
Do You Know of Any Cases of People with PPS and ALS?
Question: I had paralytic polio 64 years ago at the age of 13 months. My left leg had major paralysis and a small amount to my right leg. I always walked with a severe limp. I was diagnosed 25 years ago with PPS as I was developing new weakness in my legs. Four years ago, swallowing began to bother me …
How Do You Feel About the Pain Patch Duragesic?
Question: I am now 76, had polio when I was 4. Since post-polio syndrome (PPS) hit me, I needed a leg brace and walk with two canes. I can never remember a day without pain, but now it seems to have spread all over my body, not just my legs. My question is: How do you feel about the pain …
Advice for Foot Edema After Hernia Surgery
Question: I have lower left leg PPS atrophy. Since hernia surgery recently, I haven’t been able to walk or bicycle as I regularly used to do. I’ve sometimes noticed worrisome foot edema that is more pronounced and sustained since the surgery. Other than trying not to sit for too long, cutting back on salt and elevating the leg more, is …