Shared peer advice from polio survivors about what works for them.

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Can Exercise Benefit Weakening Leg Muscles?

Brian Tiburzi

Question: My husband had polio at age 8. He is now 71. His left leg has started giving out on him and he falls. He goes to a special trainer, but I’m afraid the trainer doesn’t know how to treat this. What type of exercises should benefit him, and what should he avoid? Answer: Your husband’s leg weakness is most …

Should Polio Survivors Take Beta Blockers and Do They Work for Atrial Fibrillation?

Brian Tiburzi

Question: I’m interested in finding out if polio survivors should or should not take beta blockers. I have atrial fibrillation and the doctors keep trying me on beta blockers and I have trouble taking them. Do they work for atrial fibrillation? Answer: Some polio survivors can tolerate, and benefit from, taking beta blockers, but many are unable to tolerate them …

Since Polio and Shingles are Both Nerve Diseases are There Any Special Precautions, Medicines, or Treatments to be Had?

Brian Tiburzi

Question: My 83-year-old wife had bulbar polio when she was 17. She is now wheelchair-bound and is suffering severe pain from shingles. My question is: Since polio and shingles are both nerve diseases is there any special precaution, medicine or treatment she should have? Answer: Although polio and shingles are both a result of virus infections, they are not related …

Is There a Link Between Post-Polio and High Blood Pressure?

Brian Tiburzi

Question: I contracted polio in 1984, when I was 3 years old. In 2009, I discovered that I had very high blood pressure with figures ranging between 160/90 and 200/110. I have been on medication since then but there is no change thus far. At times I feel so weak after taking medication. My question: Is there a link between …

How Does Fatigue Affect People Who Have Had Polio?

Brian Tiburzi

Question: I had polio in both legs at age 10 in 1953 and was unable to walk for a year. With therapy and exercise, I pretty well recovered in one leg and can walk without help. How does fatigue affect people who have had polio? I’m constantly tired. A sleep study shows some sleep apnea and some restless leg syndrome …

Could Childhood Polio Cause an Old Injury to the Frontal Lobe?

Brian Tiburzi

Question: I recently came down with Bell’s Palsy. To rule out a stroke, I had an MRI. This showed some, what was thought to be, old injury. I don’t ever remember having any such thing. It is in the right front lobe. I had polio in 1949 at the age of 2, and I now have PPS. The polio affected …

Advice for Muscle Atrophy in PPSers Who Use Wheelchairs

Brian Tiburzi

Question: I have been having a LOT of pain in my back through my butt into my lower back. I looked up muscle groups and think I see what is causing the problem. I sit in at my desk nine or so hours six days a week in order to survive financially. I never realized sitting in a wheelchair could …

Do You Know of Any Cases of People with PPS and ALS?

Brian Tiburzi

Question: I had paralytic polio 64 years ago at the age of 13 months. My left leg had major paralysis and a small amount to my right leg. I always walked with a severe limp. I was diagnosed 25 years ago with PPS as I was developing new weakness in my legs. Four years ago, swallowing began to bother me …