Question: I have been having a LOT of pain in my back through my butt into my lower back. I looked up muscle groups and think I see what is causing the problem. I sit in at my desk nine or so hours six days a week in order to survive financially. I never realized sitting in a wheelchair could …
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Do You Know of Any Cases of People with PPS and ALS?
Question: I had paralytic polio 64 years ago at the age of 13 months. My left leg had major paralysis and a small amount to my right leg. I always walked with a severe limp. I was diagnosed 25 years ago with PPS as I was developing new weakness in my legs. Four years ago, swallowing began to bother me …
How Do You Feel About the Pain Patch Duragesic?
Question: I am now 76, had polio when I was 4. Since post-polio syndrome (PPS) hit me, I needed a leg brace and walk with two canes. I can never remember a day without pain, but now it seems to have spread all over my body, not just my legs. My question is: How do you feel about the pain …
Advice for Foot Edema After Hernia Surgery
Question: I have lower left leg PPS atrophy. Since hernia surgery recently, I haven’t been able to walk or bicycle as I regularly used to do. I’ve sometimes noticed worrisome foot edema that is more pronounced and sustained since the surgery. Other than trying not to sit for too long, cutting back on salt and elevating the leg more, is …
EMG on Limb with No Electrical Response and Other Options?
Question: I have a question regarding differential diagnosis specifically utilizing electromyographpy (EMG, a test that measures the electrical activity of muscles at rest and during contraction). I am 63 with a family history of stenosis. I have low back pain, sometimes radiating diagonally to the hip/thigh region and increasing in intensity, leading to sudden inability to rise from sitting to …
Understanding the Approach of a New Primary Care Doctor
Question: My physician retired, and my new primary care doctor is “reevaluating” everything. I am nervous because he is questioning my medications, and I am not sure he understands my history. Can you help me understand his approach and offer assuring advice as he and I get to know each other? I am especially concerned about my new doctor’s making …
Are There Any Nutritional Issues Specifically for Polio Survivors, Specific Dietary Needs or Concerns, or Any Beneficial Supplements?
Question: Are there any nutritional issues that polio survivors should pay special attention to? Are there any particular dietary needs or concerns? Any supplements that are beneficial? Answer: There are several important nutritional issues for people who had polio. No other issue is more important to good health than optimal nutrition, and no other is more controversial and little studied …
Is There a Connection Between Weak Leg Muscles and Using Toes More to Walk?
Question: As my leg muscles become weaker, I notice that now I use my toes more than my whole foot when I walk. A polio friend of mine has made the same observation about his method of walking. Is this coincidence or is there a connection between weak leg muscles and using toes more to walk? GARY FREDERICKS Answer: The …
Do “Cures” for PPS Have Any Beneficial Ingredients that May Help Us?
Question: I have seen advertisements for products that claim to “cure” PPS. From all I know, there is no cure. Do these products have any beneficial ingredients that may help us? Answer: One must always be skeptical of anything advertised as a “cure” for PPS, because it is a condition that almost certainly has many causes. Most advertised products are …
Can I Regain Some Muscle Mass and Strength Through Exercise?
Question: I read with great interest the question and answer about knees collapsing in the in the Vol. 26, No. 2 (www.post-polio.org/ edu/pphnews/pph26-2sp10p7.pdf). I had polio at age 1. I’m told that I made a full recovery and that our local doctor used me as an example of a “miraculous” recovery. A graduate of the U.S. Naval Academy, I am …