Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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How Do You Feel About the Pain Patch Duragesic?

Brian Tiburzi

Question: I am now 76, had polio when I was 4. Since post-polio syndrome (PPS) hit me, I needed a leg brace and walk with two canes. I can never remember a day without pain, but now it seems to have spread all over my body, not just my legs. My question is: How do you feel about the pain …

Advice for Foot Edema After Hernia Surgery

Brian Tiburzi

Question: I have lower left leg PPS atrophy. Since hernia surgery recently, I haven’t been able to walk or bicycle as I regularly used to do. I’ve sometimes noticed worrisome foot edema that is more pronounced and sustained since the surgery. Other than trying not to sit for too long, cutting back on salt and elevating the leg more, is …

EMG on Limb with No Electrical Response and Other Options?

Brian Tiburzi

Question: I have a question regarding differential diagnosis specifically utilizing electromyographpy (EMG, a test that measures the electrical activity of muscles at rest and during contraction). I am 63 with a family history of stenosis. I have low back pain, sometimes radiating diagonally to the hip/thigh region and increasing in intensity, leading to sudden inability to rise from sitting to …

Understanding the Approach of a New Primary Care Doctor

Brian Tiburzi

Question: My physician retired, and my new primary care doctor is “reevaluating” everything. I am nervous because he is questioning my medications, and I am not sure he understands my history. Can you help me understand his approach and offer assuring advice as he and I get to know each other? I am especially concerned about my new doctor’s making …

Are There Any Nutritional Issues Specifically for Polio Survivors, Specific Dietary Needs or Concerns, or Any Beneficial Supplements?

Brian Tiburzi

Question: Are there any nutritional issues that polio survivors should pay special attention to? Are there any particular dietary needs or concerns? Any supplements that are beneficial? Answer: There are several important nutritional issues for people who had polio. No other issue is more important to good health than optimal nutrition, and no other is more controversial and little studied …

Is There a Connection Between Weak Leg Muscles and Using Toes More to Walk?

Brian Tiburzi

Question: As my leg muscles become weaker, I notice that now I use my toes more than my whole foot when I walk. A polio friend of mine has made the same observation about his method of walking. Is this coincidence or is there a connection between weak leg muscles and using toes more to walk? GARY FREDERICKS Answer: The …

Do “Cures” for PPS Have Any Beneficial Ingredients that May Help Us?

Brian Tiburzi

Question: I have seen advertisements for products that claim to “cure” PPS. From all I know, there is no cure. Do these products have any beneficial ingredients that may help us? Answer: One must always be skeptical of anything advertised as a “cure” for PPS, because it is a condition that almost certainly has many causes. Most advertised products are …

Can I Regain Some Muscle Mass and Strength Through Exercise?

Brian Tiburzi

Question: I read with great interest the question and answer about knees collapsing in the in the Vol. 26, No. 2 (www.post-polio.org/ edu/pphnews/pph26-2sp10p7.pdf). I had polio at age 1. I’m told that I made a full recovery and that our local doctor used me as an example of a “miraculous” recovery. A graduate of the U.S. Naval Academy, I am …

Is Post-Polio Syndrome Life-Threatening, Will the Effects Intensify, and Does it Affect the Brain’s Ability to Function in Speech, Sight, and Thought Processes?

Brian Tiburzi

Question: Often we polio survivors have very few options that are helpful in understanding our circumstances and what direction to take. Thank you for being available to provide this important service. Here is my question in three parts. When I read The Polio Paradox by Richard L. Bruno, PhD, he assured us that post-polio syndrome (PPS) is not life threatening. …