For many years I have been searching the Northeast for a real orthopedic shoemaker who makes a quality and-crafted shoe that looks good, feels comfortable and is reasonably priced. Until recently I have had no success and resorted to having my shoes made overseas where there are still craftsmen who take pride in producing a fine orthopedic shoe. I was …
Shared peer advice from polio survivors about what works for them.
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News about people who have made significant contributions to the disability community.
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From Maggie Prestwich about John Prestwich
“It is with great sadness that I write to tell you all that my darling John died on Monday 27th February. He had been in St. Thomas’ Hospital, London for a few weeks undergoing tests for an obvious problem with his blood chemistry. The day he was due to come home he suddenly developed tremendous stomach pains. Following investigations and …
Aqua-ritis
Marylou A., Allison Park, Pennsylvania I just wanted to share that since September, I have been enrolled in a water exercise program designed for folks who have arthritis, “Aqua-ritis.” It is offered through the local community college, while the pool is in a convent. With the assistance of my polio doctor, I chose this particular program and he limited me …
Personal Viewpoint: Housing Options
Carol Ranelli, Virginia Article first published in Polio Deja View, newsletter of Central Virginia Post-Polio Support Group, Spring 2004. At some point, all we PPSers have to consider what are the best housing options for us as we age and develop increasing mobility problems. We may reach retirement and decide to move to a warmer climate or closer to children …
Eyelid Reduction Surgery
What started as a routine visit to my optometrist to check the blurred vision in one eye led to a series of complex events. The blurred vision was diagnosed as a film behind a lens implanted after cataract surgery. This could easily be corrected by a laser treatment. Dr. Terria L. Winn, ophthalmologist at Grene Vision in Wichita who performed …
Photograph my polio leg with a thermal infrared camera
I recently had the opportunity to photograph my polio leg with a thermal infrared camera. This technology was developed by the military to search out warm bodies hidden in the Vietnam rainforest. I don?t know what companies use it for, but they were showing off the technology at a conference and I was able to use it to see that …
News from Ála Wokoun, Czech Polio Survivor
The last issue of our Bulletin of the Czech Polio Survivors’ Association has published my article and included basic information on the recent changes in your excellent organization at Post-Polio Health International and your informative Post-Polio Health. Last November, I suffered from a new physical complication in addition to my polio. My leg broke and due to my high age …
Supplements help Leg Cramps
I’m 66 years old and had leg cramps when I was a little kid and into my 20s and 30s. I especially got them when I was stressed out (by an alcoholic father or later, after I got away from my parents, by studying long hours.) I found out about 17 years ago that indeed I did have polio, as …
In Memoriam: Edward Anthony “Tony” Oppenheimer, MD, FCCP (1937-2005)
Our readers will be saddened by news of the death of Dr. Tony Oppenheimer, who died of complications of multiple myeloma in November. Many of you knew Dr. Oppenheimer through his extensive email practice on respiratory matters related to neuromuscular disease, begun after he retired in 2000 as Chief of Pulmonary and Critical Care Medicine, Southern California Kaiser Permanente Group. …
What Works: Results and Implications of Post-Polio Clinic Survey
Polio survivors who were evaluated and treated in the post-polio clinic at Saint Mary’s Medical Center in San Francisco were surveyed in order to answer four critical questions. We wanted to know if our advice was useful. Most importantly, we wanted to know how polio survivors felt months or years after visiting the clinic. We also wanted to know why …