Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Knee Surgery at 80

I am an 80-year-old woman who had a mild case of paralytic polio in July of 1932 when I was 3-1/2 years old, while living in a small town in the Boston suburbs in Massachusetts. I had a slight fever and my Dad found me creeping upstairs on my hands and knees. I had been walking since I was 10 …

2009 Living with Polio in the 21st Century: PHI’s 10th International Conference

Living with Polio in the 21st Century was the title of Post-Polio Health International’s 10th International Conference at Roosevelt Warm Springs Institute for Rehabilitation (RWSIR) in Warm Springs, Georgia, April 23-25, 2009. “The Spirit of Warm Springs” was evident as the staff at RWSIR welcomed 436 registrants. In attendance were survivors, family members and health professionals from 11 countries (46 individuals) …

Hormonal and nutritional supplements help polio survivor

If anything in my story could help anyone else it is well worth trying to share what I’ve discovered. Hindsight is 20/20 so it is easier to condense the results rather than try to relate step-by-step. I was five years old and spent 2-3 months at the Sister Kenny Foundation in Minneapolis, MN. I walked away and never thought much …

My List of What Works for Me

Shower Stool & Shower Hose Remote for the TV Commode next to the bed Bed very close to bathroom ‘Reacher’ in every room Microwave & Toaster Oven Fabric Shoe Bag hanging on door to hold shoes, baseball hats, visors, cat’s brush, neck collars Fabric & Clear Plastic Hanging Shoe Bags with horizontal openings for my long-sleeved t-shirts, kept in color …

Discovering the gift of poetry within

In the summer of 1958 I contracted paralytic polio. I was blessed to be able to walk again and like so many polio survivors, I could not compete in athletics but learned to excel academically. I received a masters degree in social work and worked for over 25 years as a social worker in psychiatric and medical settings. Since 1996 …

Wondering about beneficial effects of Omega 3

I had paralytic polio when I was a little girl (in the early sixties). I am still only in my forties but for a few years I have been developing weakness in my leg muscles and more recently my arms and around my back. I had never heard of PPS until a couple of days ago. I now know that …

Wondering about beneficial effects of Omega 3

I had paralytic polio when I was a little girl (in the early sixties). I am still only in my forties but for a few years I have been developing weakness in my leg muscles and more recently my arms and around my back. I had never heard of PPS until a couple of days ago. I now know that …

Polio survivor encourages travel

I have done a lot of travelling even with my disability; some of it very worthwhile; some of it not so worthwhile. I have post-polio, live in Western Australia, but was born in Hobart, Tasmania, Australia. I am 59 years young. I know that if you put your mind to something and you make preparations, most things will go to …

Post-polio and Breast Cancer

I have joined Post-Polio Health International and would like to submit a question. I am a 56-year-old polio survivor who was diagnosed with breast cancer last year. I underwent a lumpectomy, chemotherapy, radiation therapy and my oncologist prescribed Aromacin for the next 5 years. I was unable to tolerate that drug due to its side effect of joint pain. My …