Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Of Crutches and Canes

Brian Tiburzi

Have you thought about using a cane or crutch but dismissed the idea because you’d be self-conscious? Think you’ll look “disabled”? Figure that you’ve gotten along okay without walking aids so far, so why start now? Good question.I know that feeling well and talked about it in “Facing Reality.” But ask yourself if you are really getting along okay. Do …

Walkers

Brian Tiburzi

If you’re at risk of falling or have some balancing problems you might want to consider using a walker. It is imperative that your walker is properly fitted with comfortable handgrips and that it is the correct height for you. To determine the correct height, stand inside the walker, let your arms rest at your sides and match the crease …

Roll Models: Scooters and Wheelchairs

Brian Tiburzi

Many of us who had polio used canes, wheelchairs and bracing on our path to recovery and gradually were able to relinquish them. Others of us have developed different chronic conditions that have managed just fine until now without mobility equipment. But as we get older our bodies change, our symptoms escalate and daily activities use so much more energy …

Winter

Brian Tiburzi

BABY, IT IS COLD OUTSIDE! William G. Stothers Snow and bone-chilling cold are making this a brutal winter across North America. And Phil the groundhog says it will go on for another six weeks. Bad news for people stuck in this kind of weather, especially polio survivors. We know the snow-choked wheelchair wheels, snow-banked sidewalks and curb cuts, melting messes indoors, …

Relationships: An Overview

Brian Tiburzi

Every relationship is built upon unique experiences and qualities. For a relationship to succeed, both individuals will need to cope with any disability. This requires a realistic acceptance of the disability with an emphasis on what one can do, rather than on what one cannot do. The following are brief general suggestions on how to maintain personal relationships when facing …

Communication

Brian Tiburzi

Communication is a two-way street. Participants in any relationship must have a mutual respect for the values, experiences, and skills that each brings to the encounter. Everyone is responsible for his/her own feelings, and experts recommend that feelings be expressed in the first person. Acknowledge them but do not place responsibility for them on someone else. For example, saying, “When …

Childcare

Brian Tiburzi

HINTS FOR RAISING CHILDREN BY MOTHERS WHO HAD POLIO One: I had polio at 23 and was married at 25. I had one daughter and two sons. I wore a white cotton support garment with shoulder straps and laces that expanded with girth. I also wore a right leg brace. Now, I wear braces on both legs, because with time …

Friends

Brian Tiburzi

RECONNECTING AFTER 55+ YEARS!    Beverly Schmittgen, EdD “Joyce Tepley, Joyce, Tepley,” I kept repeating to myself. I KNOW her! That was my first thought after finding an article she had written for the newsletter published by the Post Polio International organization in St. Louis. I distinctly remembered that she and I had had beds next to each other in …

Loss

Brian Tiburzi

Facing new functional loss is one aspect of the late effects of polio. While a positive focus is healthy and contributes to adjustment, to focus only on the positive, and to ignore the loss and its pain, separates one from his/her own experiences. Individuals need to adapt to, or grieve, loss. If grieving is incomplete, further psychological growth and development …

CDC Study Completed

Brian Tiburzi

Frederick M. Maynard, MD, Michigan Frederick M. Maynard, MD (now in Marquette, Michigan) and a team of investigators from the University of Michigan Medical Center, Ann Arbor, Michigan, have completed their final report for the study “The Late Effects of Polio: A Model for the Identification and Assessment of Preventable Secondary Disabilities.” A summary follows. Overview of the Study The …