Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Gardening

Brian Tiburzi

WAY TO GROW: THE ACCESSIBLE GARDEN Designing a garden, planting, tending and then enjoying the results leads to a sense of peace, serenity and fulfillment. An accomplishment all our own, restoring our self-esteem, with results we can share with others. Is there anyone who doesn’t find pleasure working with the earth? And yet gardening is often the first activity people …

Reading

Brian Tiburzi

TALKING BOOKS LIBRARY I think that reading a good book while reclining is one of the great pleasures in life. But having to hold the book can detract from the experience, especially if the book is hardcover. So how about listening to the book instead? There are two ways to enjoy audio books inexpensively. You can drive to the library, …

Orthotics

Brian Tiburzi

Orthotics is the use of braces and splints (orthoses) to biomechanically assist in supporting and stabilizing parts of the body affected by paralyzed and/or weak muscles (Bunch, 1985). Orthotics, grouped by a description of the area in which they provide support, are usually divided into three categories:  lower extremity, upper extremity, and spinal. For example, in lower extremity orthotics, foot …

The Utility of Post-Polio Bracing

Brian Tiburzi

Irwin M. Siegel, MD Patients with post-polio weakness can often benefit by using an appropriate brace. Braces can 1) provide support, 2) correct a flexible deformity, or 3) relieve pain. Usually it is best to correct a fixed deformity through stretching or surgery before applying the brace. Post-polio patients require special consideration when it comes to bracing. They usually present …

Brace Yourself!

Brian Tiburzi

Along with wheelchairs, nothing conjures up as much anxiety as the idea of having to use new—or long-ago discarded—splints, braces, canes or crutches. Using supportive devices may seem like sending a beacon to the world that we are disabled. After years of functioning without obvious aids, it seems like stepping backwards. I know how difficult these transitions are. I had …

Brace Maintenance and Care Guidelines

Brian Tiburzi

Tamara Treanore, CO, ABC Daniel M. Ryan, MD Brace maintenance and care will improve the function, extend the life and improve the comfort of the brace. The following guidelines are provided for your use. Please feel free to ask any questions. I. Plastic braces: Check for discoloration in the plastic on a regular basis. Discoloration indicates that the plastic in those …

Canes

Brian Tiburzi

Are you afraid to be in crowds because you may fall if someone bumps you? Does your “good” leg hurt because it holds most of our weight? Try a cane. Here are a few tips on selecting and using a cane, which you can make yourself or purchase at a local drug store/medical supply store. Some insurance plans will cover the …

Life-course Perspective

Brian Tiburzi

The life-course framework for studying disability emphasizes the importance of developmental stages and tasks within an historical and medical context. It finds that decisions about current disability-related issues are influenced by broader concerns about identity and the fulfillment of personal and cultural expectations (Scheer & Luborsky, 1991). Early life experiences with disability are often found to still be important in …

Self-Assessment

Brian Tiburzi

Post-polio advocates noticed that polio survivors experienced very frustrating visits to physicians when reporting new post-polio problems. Barriers included the limited amount of time a physician had for an appointment and the lack of experience of physicians in the early days. They weren’t as skilled at asking the right questions. Additionally, polio survivors knew they didn’t feel well, but hadn’t …

Polio Doctors

Brian Tiburzi

There is no official certification for a “polio doctor.” The most common use of this informal designation is a physician with knowledge, experience and interest in evaluation and treatment of polio survivors. Given the most common new disabling medical problems of polio survivors, physicians with expertise in neuromuscular disease management that includes the ability to recognize and treat chronic musculoskeletal …