Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Sample Exercises

Brian Tiburzi

This set of sample exercises for polio survivors was prepared by Christy Osborn, PT, DPT of Bay Cliff Health Camp in Big Bay, Michigan. Note: Caution should be taken in ensuring that each individual has a program that is tailored to fit their unique needs and is designed for the individual following a thorough assessment and is supervised initially by knowledgeable health …

A Question about Bracing

Brian Tiburzi

Question: What type of brace would you recommend for a post-polio patient with poor strength in the thigh muscles? We are in New Hampshire, USA. Answer: As for your patient, I am going to break down my remarks into two sections, depending on some of the characteristics of your patient. Since your email said your patient had muscle weakness in the thigh, …

How to Exercise If You Are Living with Post Polio Syndrome

Brian Tiburzi

By Stephen Pate If you have Post Polio Syndrome (PPS), it’s vital to exercise moderately every second day to keep the muscles we have and avoid obesity, diabetes, stroke and heart disease. Exercise also helps us accomplish more of those activities of daily living and can improve how we feel. Why Exercise? While it seems obvious, many of us with …

What to do about a bursa?

Brian Tiburzi

In mid-August 2016, I bumped my right elbow on the bar of my wheelchair, and it hurt a lot for a few days. But it wasn’t till late September that I developed a bursa. The nurse practitioner at our doctor’s office drained it, but it filled back up. When I went there the following week she didn’t want to drain …

La Poliomielitis No Tiene Un Contexto Social Actual

Brian Tiburzi

PROMOVIENDO SOLUCIONES POSITIVAS Salud Post-Polio, Primavera 2016, Volumen 32, Número 2 PREGUNTA: Como joven sobreviviente de la poliomielitis, creo que lo más difícil es tener una enfermedad / diagnóstico que ya no tiene contexto social actual. Es como estar atrapado en un túnel del tiempo cultural. Tengo una condición que está relativamente curada y erradicada de la mayoría de las partes …

Techniques to Help Us Make Changes

Brian Tiburzi

Mavis Matheson, MD, Regina, Saskatchewan, Canada In 1995, I wrote an article called Changing Your Life By Conserving Energy. In it, I listed three techniques from an article by Sybil Kohl. Her techniques have helped me to make healthy choices and prevent further pain and weakness. Kohl [1] suggests three techniques that we could use to help ourselves make changes. These are …

What is expected of a group leader?

Brian Tiburzi

LEADERSHIP  ∞ Nancy Baldwin Carter, Omaha, Nebraska QUESTION: “There is some question about what all is expected and not expected of the leaders of our group. We have a couple of new members who have come in and seem to think that we don’t ask for or take suggestions from anyone and that we are a three run group which we are …

Losing Members?

Brian Tiburzi

∞ LEADERSHIP Nancy Baldwin Carter, Omaha, Nebraska QUESTION: “Our group is down to about half a dozen members who rotate meeting at each other’s homes for lunch once a month. I’ve heard of other groups that are losing members as well. What can we do to keep our post-polio data bases from eroding to the point where we lose all contacts and …

Finding Good Information Online

Brian Tiburzi

∞ LEADERSHIP Nancy Baldwin Carter, Omaha, Nebraska QUESTION: “How do we help our members find good online information and use this in communicating with those in the medical community and others?” ANSWER: Finding reliable and relevant polio information online can sometimes be a challenge. The difficulty is not a paucity of information but rather the overwhelming number of possibilities to …

Losing Our Rights?

Brian Tiburzi

∞ LEADERSHIP Nancy Baldwin Carter, Omaha, Nebraska QUESTION: “Members in our group have been commenting on certain changes that affect our lives in many ways. Seems as if various government agencies aren’t as willing to help as before, for instance, and sometimes we’re left with a financial burden we can’t handle. Are we in danger of losing some of the rights so …