Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Childcare

Brian Tiburzi

HINTS FOR RAISING CHILDREN BY MOTHERS WHO HAD POLIO One: I had polio at 23 and was married at 25. I had one daughter and two sons. I wore a white cotton support garment with shoulder straps and laces that expanded with girth. I also wore a right leg brace. Now, I wear braces on both legs, because with time …

Friends

Brian Tiburzi

RECONNECTING AFTER 55+ YEARS!    Beverly Schmittgen, EdD “Joyce Tepley, Joyce, Tepley,” I kept repeating to myself. I KNOW her! That was my first thought after finding an article she had written for the newsletter published by the Post Polio International organization in St. Louis. I distinctly remembered that she and I had had beds next to each other in …

Loss

Brian Tiburzi

Facing new functional loss is one aspect of the late effects of polio. While a positive focus is healthy and contributes to adjustment, to focus only on the positive, and to ignore the loss and its pain, separates one from his/her own experiences. Individuals need to adapt to, or grieve, loss. If grieving is incomplete, further psychological growth and development …

CDC Study Completed

Brian Tiburzi

Frederick M. Maynard, MD, Michigan Frederick M. Maynard, MD (now in Marquette, Michigan) and a team of investigators from the University of Michigan Medical Center, Ann Arbor, Michigan, have completed their final report for the study “The Late Effects of Polio: A Model for the Identification and Assessment of Preventable Secondary Disabilities.” A summary follows. Overview of the Study The …

Gardening

Brian Tiburzi

WAY TO GROW: THE ACCESSIBLE GARDEN Designing a garden, planting, tending and then enjoying the results leads to a sense of peace, serenity and fulfillment. An accomplishment all our own, restoring our self-esteem, with results we can share with others. Is there anyone who doesn’t find pleasure working with the earth? And yet gardening is often the first activity people …

Reading

Brian Tiburzi

TALKING BOOKS LIBRARY I think that reading a good book while reclining is one of the great pleasures in life. But having to hold the book can detract from the experience, especially if the book is hardcover. So how about listening to the book instead? There are two ways to enjoy audio books inexpensively. You can drive to the library, …

Orthotics

Brian Tiburzi

Orthotics is the use of braces and splints (orthoses) to biomechanically assist in supporting and stabilizing parts of the body affected by paralyzed and/or weak muscles (Bunch, 1985). Orthotics, grouped by a description of the area in which they provide support, are usually divided into three categories:  lower extremity, upper extremity, and spinal. For example, in lower extremity orthotics, foot …

The Utility of Post-Polio Bracing

Brian Tiburzi

Irwin M. Siegel, MD Patients with post-polio weakness can often benefit by using an appropriate brace. Braces can 1) provide support, 2) correct a flexible deformity, or 3) relieve pain. Usually it is best to correct a fixed deformity through stretching or surgery before applying the brace. Post-polio patients require special consideration when it comes to bracing. They usually present …

Brace Yourself!

Brian Tiburzi

Along with wheelchairs, nothing conjures up as much anxiety as the idea of having to use new—or long-ago discarded—splints, braces, canes or crutches. Using supportive devices may seem like sending a beacon to the world that we are disabled. After years of functioning without obvious aids, it seems like stepping backwards. I know how difficult these transitions are. I had …

Brace Maintenance and Care Guidelines

Brian Tiburzi

Tamara Treanore, CO, ABC Daniel M. Ryan, MD Brace maintenance and care will improve the function, extend the life and improve the comfort of the brace. The following guidelines are provided for your use. Please feel free to ask any questions. I. Plastic braces: Check for discoloration in the plastic on a regular basis. Discoloration indicates that the plastic in those …