Shared peer advice from polio survivors about what works for them.

Share your solution:

News about people who have made significant contributions to the disability community.

Share your story:

CDC Study Completed

Brian Tiburzi

Frederick M. Maynard, MD, Michigan Frederick M. Maynard, MD (now in Marquette, Michigan) and a team of investigators from the University of Michigan Medical Center, Ann Arbor, Michigan, have completed their final report for the study “The Late Effects of Polio: A Model for the Identification and Assessment of Preventable Secondary Disabilities.” A summary follows. Overview of the Study The …

Opportunities to Participate

Brian Tiburzi

Opportunity to Participate in Research For more than 10 years, researchers have explored using IVIg to help improve quality of life of polio survivors. The article linked below lists the medical articles published on this topic. To find the abstracts, go to PHI’s Polio Place. Also in the article below is a link to the worldwide centers and the person to …

Aging with Post-Polio Syndrome and Sleep Problems

Brian Tiburzi

Researchers at the University of Washington’s Aging Rehabilitation Research and Training Center (2009) One of the first things that people notice as they grow older is a change in their sleeping patterns. The older they get, the less they sleep; or they just feel less rested when they wake up. Most people are not sure why they do not feel …

Aging Well with Post-Polio Syndrome: Dealing with Pain

Brian Tiburzi

Researchers at the University of Washington’s Aging Rehabilitation Research and Training Center Chronic pain is something that many people, including many individuals with post-polio syndrome (PPS), face on a day-today basis. In fact, from the preliminary results of our recent survey of post-polio people, we found that 373 out of 419, or 89 percent, reported at least some daily pain. …

Aging Well with Post-Polio Syndrome: Don’t Take Fatigue Lying Down

Brian Tiburzi

Rehabilitation Research and Training Center (RRTC) on Aging with a Physical Disability (2011) Fatigue is a major problem for many people with post-polio syndrome (PPS), one that is frustrating and hard to measure. It’s a symptom that can affect your ability to work, your mobility and your quality of life. People with PPS report fatigue as their most persistent and …

Aging Well with Post-Polio Syndrome: The Benefits of Muscle Strengthening

Brian Tiburzi

Rehabilitation Research and Training Center (RRTC) on Aging with a Physical Disability (2011) Muscular Strengthening is one of the most common recommendations of physical medicine and rehabilitation for people with PPS struggling with symptoms. However, historically, any type of exercise was once thought to be bad for people with neuromuscular diseases (such as muscular dystrophy, post-polio syndrome, cerebral palsy, etc.). …

Research – Is It For You?

Brian Tiburzi

Roberta Simon, RN, Illinois Research is an important aspect for the medical community in dealing with any health difficulty that has no previous history of known causes or treatments. Unfortunately, as we are all aware, post-polio syndrome falls into this category. Since many of us have been or will in the future be asked to participate in research, I think …

Multicenter, Multi-country Study Underway (2015)

Brian Tiburzi

Joan L. Headley, Executive Director, Post-Polio Health International Typical of most studies, the name of the most recently announced study related to post-polio syndrome is long but exactingly descriptive: A Multicenter, Prospective, Randomized, Placebo-controlled, Double-blind, Parallel-Group Clinical Trial to Assess the Efficacy and Safety of Immune Globulin Intravenous (Human) Flebogamma® 5% DIF in Patients with Post-Polio Syndrome. The main purpose of the study …

Summary of Poliovirus Genome in Patients with Post-Polio Syndrome

Brian Tiburzi

In late 2013, Post-Polio Health International awarded $100,000 to the team of Antonio Toniolo, MD; Andreina Baj, MD; Martina Colombo, PhD – Laboratory of Medical Microbiology and Virology, Department of Biotechnology and Life Sciences, University of Insubria Medical Center, Varese, Italy, to expand its search for poliovirus genome in various populations. The team’s work is enhanced by the expertise of …

Role of Oral Glutathione (2013)

Brian Tiburzi

PHI awarded $25,000 each to two research groups in 2011. This is the report from the University of Michigan. Claire Z. Kalpakjian, PhD, MS, University of Michigan, Department of Physical Medicine and Rehabilitation, Ann Arbor, Michigan Glutathione is a powerful antioxidant and plays an important role in a number of cellular processes and the maintenance of cellular homeostasis associated with health …