Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Support Groups

Brian Tiburzi

GOALS AND LEADERSHIP WHAT ARE THEY? WHY DO IT ALONE? WHO NEEDS THEM? WHO CAN BENEFIT? IS OUR GROUP NORMAL? EN ESPAÑOL GOALS AND LEADERSHIP The goal of a support group is to empower its members with the tools necessary to make adjustments needed to continue a life of dignity and independence. Contrary to the image sometimes portrayed in the …

Retreats

Brian Tiburzi

Post-polio wellness retreats provide an opportunity to renew the mind, body and spirit to have post-polio questions answered by unhurried medical experts to spend custom-designed days enjoying recreational activities to learn more about how to stay strong and healthy Moving several steps beyond re-rehabilitation, retreats offer ongoing wellness approaches that promise to improve overall health and quality of life. Important …

Post-Polio Wellness Retreat Ideas from Colorado

Brian Tiburzi

The first Colorado Post-Polio Wellness Retreat was held Aug. 17-21, 2014 at Rocky Mountain Village (Easter Seals Camp) in Empire, Colorado about 40 miles west of Denver. In attendance were 53 people (Three were faculty and not polio survivors; eight spouses/caregivers; 42 polio survivors). There were two on-site faculty/organizers/polio survivors and a number of faculty members who drove up for …

Wellness

Brian Tiburzi

Throughout life, people move in one direction or another on the wellness continuum ranging from maximum performance on one end to serious illness or premature death on the other end. Polio survivors do not need to constantly struggle from one health crisis to the next. While some health problems require professional assistance, others can be controlled by the individual. Once …

The Miracle of the Singing Bunny

Brian Tiburzi

Sunny Roller Her bright blue-eyed pre-kindergarten daughter lie flaccid in a hospital bed, almost completely paralyzed from polio. Now 60 years ago, that horrifying summer polio epidemic had swooped this young family into its vile clutches, never to fully let go during their generation. Devastated, Marj, her husband, Art, and their toddling one-year old son, Scotty somehow got a ride back and …

Support Group Dysfunction

Brian Tiburzi

From the series, Polio Survivors Ask, by Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. Q: I am 58 years old and I attended a support group meeting recently. I will never go back. The members were friendly enough, but the message I heard over …

Why We’re Here: Support Groups

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. A while back a nutritional product’s flyer, filled with impressive success stories, made the rounds. One of its claims had to do with a polio survivor, unable to lift her legs for 60 years—until …

“Do I have to talk about the past?”

Brian Tiburzi

Post-Polio Health, Volume 27, Number 2, Spring 2011. Dr. Rhoda Olkin is a Distinguished Professor of Clinical Psychology at the California School of Professional Psychology in San Francisco, as well as Executive Director of the Institute on Disability and Health Psychology. She is a polio survivor and single mother of two grown children. Dr. Stephanie T. Machell is a psychologist in …

Too Pushy on Suggesting Changes?

Brian Tiburzi

Post-Polio Health, Volume 26, Number 3, Summer 2010. Dr. Rhoda Olkin is a Distinguished Professor of Clinical Psychology at the California School of Professional Psychology in San Francisco, as well as Executive Director of the Institute on Disability and Health Psychology. She is a polio survivor and single mother of two grown children. QUESTION: As a group leader I sometimes feel I …

What is expected of a group leader?

Brian Tiburzi

LEADERSHIP  ∞ Nancy Baldwin Carter, Omaha, Nebraska QUESTION: “There is some question about what all is expected and not expected of the leaders of our group. We have a couple of new members who have come in and seem to think that we don’t ask for or take suggestions from anyone and that we are a three run group which we are …