Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Whose Life Is It, Anyway?

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. My friend Mary called with what she termed a dilemma: She has a friend whose mother won’t take a bath. “It’s been three months,” she said. “The woman refuses to bathe. Her daughter promises …

Changes of Heart

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. “You just don’t get it,” she said. My friend was accusing me of having “no idea what it’s like to be handicapped.” No milk of human kindness coursing through my veins, apparently. No empathy. …

Movin’ On

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. We’re talking civil rights here. Big Time. “Our crowning achievement of the 20th Century,” as Justin Dart, Jr. called it—the passage of the Americans with Disabilities Act—the ADA. On July 26 we celebrated its …

Part I — Opening the Door; PART II—The Rest of the Story

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. Part I — Opening the Door The subject doesn’t come up much. Not many in the post-polio community seem to want to talk about it. …Even though the American Medical Association declared it a disease well …

Racking Up Success

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. A few years ago Hubby’s dentist gave him a scruffily pathetic Christmas cactus that wasn’t doing well under her tutelage. He brought it home, put in on his desk under the desk lamp, in …

Come Hear the Music Play

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. The words kept running through my mind: “What good is sitting alone in your room?” Da dah da dah dah dah. Yes. That song from Cabaret. What was I thinking? Then it hit me. Exactly! How many …

Home Sweet Home?

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. FACT: 90% of Americans polled said they definitely do not want to live in a nursing facility. FACT: 80% of Americans polled want to continue living in their own homes until the end. With the total of …

What’s a Patient to Do?

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. Let’s say we’re doctor-shopping. Maybe we’ve moved to a new city or our long-time doc is retiring—for whatever reason, we need a different doctor. Question is—where to start? How to choose? We all want the best. Someone …

A Better Life

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. It’s time we got this straight: palliative care is not the same as hospice. As Karen Rafinski put it in June’s AARP Bulletin, “Palliative care is about making the most of life with a …

Close Encounters of the Post-Polio Kind

Brian Tiburzi

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association. It’s not as if we polio survivors never run into a glitch or two in a day. Let’s face it—dealing with the unexpected has become part of everyone’s routine. Developing the finesse to do …