∞ LEADERSHIP Nancy Baldwin Carter, Omaha, Nebraska QUESTION: “Our support group periodically asks the attendees for a donation, which I am glad to do. Are they obligated to send me a receipt for my taxes? Are registered non-profit group requirements different from others? Our group recently received its 501(c)(3) status.” ANSWER: Donors should have documented evidence of their donations to 501(c)(3) organizations, …
Shared peer advice from polio survivors about what works for them.
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Anesthesia Specifics for PPS
Selma Calmes, MD, (ret) anesthesiologist 1. Post-polio patients are nearly always very sensitive to sedative meds, and emergence can be prolonged. This is probably due to central neuronal changes, especially in the Reticular Activating System, from the original disease. 2. Non-depolarizing muscle relaxants cause a greater degree of block for a longer period of time in post-polio patients. The current …
Viviendo con dolor
Penney Cowan, Fundadora y Directora General de la Asociación Americana de Dolor Crónico. Saber llevar la vida hoy en día puede ser difícil. Saber llevar la vida con dolor es aún más difícil, pero es posible. Hay maneras de equilibrar su vida para que pueda vivir de la manera que elija, en lugar de permitir que su enfermedad dirija su …
Ten Axioms for Living With Polio
Joyce Ann Tepley, LMSW/ACP, LCP 1. Approach one’s life from the inside out. 2. Anything one does physically comes from an idea first. 3. Work with intention rather than will power. 4. Attitude is more iimportant than activity. 5. An attitude is an idea blended with emotion. It is the most powerful energy in the world. 6. One can profit from a negative attitude …
Health Professionals say: PPS-G14, Sequelae of Polio B91
In 2016, Post-Polio Health International (PHI) surveyed health professionals with experience in post-polio patient care. A PowerPoint of some of the data can be viewed at Survey of Health Professionals with Experience in Post-Polio Patient Care. Post-Polio Health, Volume 33, Number 3, (August, 2017) will feature an article about the results, too. One thought not discussed in either of the above …
Constipation in Polio Survivors
From my standpoint as a specialist in Physical Medicine and Rehabilitation, the connection between constipation and post-polio syndrome is academic. i.e., it is an interesting discussion and may be important, but I am not sure it changes treatment. William M. DeMayo, MD Here are some practical thoughts. I would address the issue the same as a partial neurogenic bowel, i.e., in …
When the “Cared For” Becomes the “Caregiver”
Audrey King presented at FICCDAT Conference, Toronto, Canada, June 2011 I found my mother’s diary recently – the one she kept during the 1950s when we were an Army family living in England. She’ll be 100 in 8 weeks. She lives with me, deaf, unable to walk & rapidly losing weight. She has dementia which roller coasters between inconsolable agitation …
When the “Cared For” Becomes the “Caregiver”
Audrey King presented at FICCDAT Conference, Toronto, Canada, June 2011 I found my mother’s diary recently – the one she kept during the 1950s when we were an Army family living in England. She’ll be 100 in 8 weeks. She lives with me, deaf, unable to walk & rapidly losing weight. She has dementia which roller coasters between inconsolable agitation …
Techniques to Help Us Make Changes
Mavis Matheson, MD, Regina, Saskatchewan, Canada In 1995, I wrote an article called Changing Your Life By Conserving Energy. In it, I listed three techniques from an article by Sybil Kohl. Her techniques have helped me to make healthy choices and prevent further pain and weakness. Kohl [1] suggests three techniques that we could use to help ourselves make changes. These are …
Individuals with Disabilities Education Act (IDEA)
The US Individuals with Disabilities Education Act (IDEA) ensures that all children with disabilities are entitled to a free appropriate public education to meet their unique needs and prepare them for further education, employment, and independent living. Prior to IDEA, over 4 million children with disabilities were denied appropriate access to public education. Many children were denied entry into public …