Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Summary of Poliovirus Genome in Patients with Post-Polio Syndrome

Brian Tiburzi

In late 2013, Post-Polio Health International awarded $100,000 to the team of Antonio Toniolo, MD; Andreina Baj, MD; Martina Colombo, PhD – Laboratory of Medical Microbiology and Virology, Department of Biotechnology and Life Sciences, University of Insubria Medical Center, Varese, Italy, to expand its search for poliovirus genome in various populations. The team’s work is enhanced by the expertise of …

Role of Oral Glutathione (2013)

Brian Tiburzi

PHI awarded $25,000 each to two research groups in 2011. This is the report from the University of Michigan. Claire Z. Kalpakjian, PhD, MS, University of Michigan, Department of Physical Medicine and Rehabilitation, Ann Arbor, Michigan Glutathione is a powerful antioxidant and plays an important role in a number of cellular processes and the maintenance of cellular homeostasis associated with health …

Swallowing Difficulty and the Late Effects of Polio

Brian Tiburzi

Barbara C. Sonies, PhD, CCC, BRS-S, College Park, Maryland A major polio epidemic in the mid-20th century left many survivors with a wide variety of physical limitations including problems swallowing foods. Many persons with swallowing problems also had original bulbar signs of polio including difficulty breathing, clearing the throat, speaking and singing. Some persons however, had no overt signs of …

Persisting Noninfectious Genome Fragments of Poliovirus in PPS Patients

Brian Tiburzi

In 2009, PHI awarded $25,000 to team from University of Insubria, Varese, Italy, led by Antonio Toniolo, MD, PhD, Professor of Medical Microbiology and Virology. Final Report Antonio Toniolo, MD; Andreina Baj, MD; Giuseppe Maccari, MS – Laboratory of Medical Microbiology and Virology, Department of Clinical and Biological Sciences, University of Insubria Medical Center, Varese, Italy Laura Bertolasi, MD; Salvatore …

Individuals with Disabilities Education Act (IDEA)

Brian Tiburzi

The US Individuals with Disabilities Education Act (IDEA) ensures that all children with disabilities are entitled to a free appropriate public education to meet their unique needs and prepare them for further education, employment, and independent living. Prior to IDEA, over 4 million children with disabilities were denied appropriate access to public education. Many children were denied entry into public …

Working: Laws and Resources

Brian Tiburzi

The Americans with Disabilities Act gives civil rights protections to individuals with disabilities similar to those provided to individuals on the basis of race, color, sex, national origin, age, and religion. It guarantees equal opportunity for individuals with disabilities in employment, State and local government services, public accommodations, transportation, and telecommunications.  See Title I (Employment). The Rehabilitation Act mandates non-discrimination …

Effects of Whole Body Vibration on People with Post-Polio Syndrome

Brian Tiburzi

Carolyn P. Da Silva, PT, DSc, NCS, Texas Woman’s University, Houston, Texas, and Yi-Wen Michelle Pu, MD, Baylor College of Medicine, Houston, Texas In 2013, Post-Polio Health International awarded its seventh research grant ($25,000) to lead researcher, Carolyn P. Da Silva, PT, DSc, NCS, Texas Woman’s University. The study explored an important topic – exercise. Whole body vibration (WBV) is …

Post-Polio in Jerusalem (2012)

Brian Tiburzi

PHI awarded $25,000 to the Hadassah Medical Center in Jerusalem. The 2011 study was called Characteristics of poliomyelitis and post-polio patients among Jews and Arabs in Jerusalem under the leadership of Zeev Meiner, MD, Principal Investigator, Department of Physical Medicine and Rehabilitation, Hadassah Medical Center, Jerusalem, Israel. Dr. Meiner’s co-investigators included Isabella Schwartz, MD, Head of the Department of Physical Medicine and …

Don’t Ignore Pressure Sores

Brian Tiburzi

Mary Ann Buckingham had polio when she was 12 and walked using braces and crutches. Now 73, she started using a wheelchair about 20 years ago when her arms became too weak to use crutches. As a polio support group leader for 10 years, she was well aware of the danger of pressure sores and took preventive measures to avoid …

Navigating the Seating and Mobility World with Post-Polio

Brian Tiburzi

Sara Kraft, PT, DPT, NCS, ATP, Assistant Professor, Medical University of South Carolina, Division of Physical Therapy, College of Health Professions, kraftsv@musc.edu Navigating the seating and mobility world can be daunting for many with post-polio syndrome. Issues with scoliosis, back pain and even pressure problems can be quite serious for the person living with post-polio. If using a wheelchair, the solutions …