Shared peer advice from polio survivors about what works for them.

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News about people who have made significant contributions to the disability community.

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Hormonal and nutritional supplements help polio survivor

If anything in my story could help anyone else it is well worth trying to share what I’ve discovered. Hindsight is 20/20 so it is easier to condense the results rather than try to relate step-by-step. I was five years old and spent 2-3 months at the Sister Kenny Foundation in Minneapolis, MN. I walked away and never thought much …

My List of What Works for Me

Shower Stool & Shower Hose Remote for the TV Commode next to the bed Bed very close to bathroom ‘Reacher’ in every room Microwave & Toaster Oven Fabric Shoe Bag hanging on door to hold shoes, baseball hats, visors, cat’s brush, neck collars Fabric & Clear Plastic Hanging Shoe Bags with horizontal openings for my long-sleeved t-shirts, kept in color …

Discovering the gift of poetry within

In the summer of 1958 I contracted paralytic polio. I was blessed to be able to walk again and like so many polio survivors, I could not compete in athletics but learned to excel academically. I received a masters degree in social work and worked for over 25 years as a social worker in psychiatric and medical settings. Since 1996 …

Wondering about beneficial effects of Omega 3

I had paralytic polio when I was a little girl (in the early sixties). I am still only in my forties but for a few years I have been developing weakness in my leg muscles and more recently my arms and around my back. I had never heard of PPS until a couple of days ago. I now know that …

Wondering about beneficial effects of Omega 3

I had paralytic polio when I was a little girl (in the early sixties). I am still only in my forties but for a few years I have been developing weakness in my leg muscles and more recently my arms and around my back. I had never heard of PPS until a couple of days ago. I now know that …

Polio survivor encourages travel

I have done a lot of travelling even with my disability; some of it very worthwhile; some of it not so worthwhile. I have post-polio, live in Western Australia, but was born in Hobart, Tasmania, Australia. I am 59 years young. I know that if you put your mind to something and you make preparations, most things will go to …

Post-polio and Breast Cancer

I have joined Post-Polio Health International and would like to submit a question. I am a 56-year-old polio survivor who was diagnosed with breast cancer last year. I underwent a lumpectomy, chemotherapy, radiation therapy and my oncologist prescribed Aromacin for the next 5 years. I was unable to tolerate that drug due to its side effect of joint pain. My …

Special Shoes

For many years I have been searching the Northeast for a real orthopedic shoemaker who makes a quality and-crafted shoe that looks good, feels comfortable and is reasonably priced. Until recently I have had no success and resorted to having my shoes made overseas where there are still craftsmen who take pride in producing a fine orthopedic shoe. I was …

Aqua-ritis

Marylou A., Allison Park, Pennsylvania I just wanted to share that since September, I have been enrolled in a water exercise program designed for folks who have arthritis, “Aqua-ritis.” It is offered through the local community college, while the pool is in a convent. With the assistance of my polio doctor, I chose this particular program and he limited me …

Personal Viewpoint: Housing Options

Carol Ranelli, Virginia Article first published in Polio Deja View, newsletter of Central Virginia Post-Polio Support Group, Spring 2004. At some point, all we PPSers have to consider what are the best housing options for us as we age and develop increasing mobility problems. We may reach retirement and decide to move to a warmer climate or closer to children …